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Table 1 Focus group protocol

From: Decision making around living and deceased donor kidney transplantation: a qualitative study exploring the importance of expected relationship changes

Donors

Living donor kidney recipients

Deceased donor kidney recipients

REASONS TO DONATE A KIDNEY AND REASONS TO PURSUE LIVING / DECEASED DONOR KIDNEY TRANSPLANTATION

1. How did you obtain information on living kidney transplantation? (awareness- knowledge)

1. How did you obtain information on living kidney transplantation? (awareness - knowledge)

1. Were you aware of the possibility of living kidney transplantation? (awareness – knowledge)

2. Did someone ask you to donate a kidney or did you offer to donate a kidney? Were there several potential donors? (efficacy)

2. Did you ask someone to donate a kidney or did someone offer to donate a kidney? Were there several potential donors? (efficacy)

2. Were you afraid to ask or did you not want to ask someone to donate a kidney? Did you ask someone who refused? (efficacy)

3 What was the most important motivation to donate a kidney? (attitude)

3. What was the most important motivation to accept a kidney from this living donor and not to wait for a deceased donor? (attitude)

3. What was the most important motivation to pursue kidney transplantation with a deceased rather than a living donor? (attitude)

4. Did you experience social pressure to donate a kidney? (social influences)

4. Did you experience social pressure to accept a kidney? (social influences)

 

RELATIONSHIP ASPECTS

5. Did you expect that your relationship with the recipient would change after donation? Why (not)? (predisposing factors - social)

5. Did you expect that your relationship with the donor would change after the transplantation? Why (not)? (predisposing factors - social)

4. Did you expect changes in the relationship with a potential donor, and to what extent have these influenced the decision to wait for a deceased donor? (predisposing factors - social)

6. Has the relationship with the recipient changed after donation compared to before donation? How?

6. Has the relationship with the donor changed after transplantation compared to before transplantation? How?