Table 3 Frequency of statements in the focus group sessions; differences between donors and living donor kidney recipients
Statement categories | Donors (n = 20) | Living donor kidney recipients (n = 15) | p-value |
|---|---|---|---|
LIVING DONOR KIDNEY TRANSPLANTATION | |||
Information on transplantation with living donor | |||
Received information | 3 (15) | 4 (27) | 0.43 |
Offer to donate | |||
Spontaneous offer to donate | 9 (45) | 13 (87) | 0.01 |
Several donors present | 6 (30) | 9 (60) | 0.08 |
Offer refused by recipient | 2 (10) | 2 (13) | 1.00 |
Offer medically unfit for recipient | 3 (15) | 6 (40) | 0.13 |
Offer withdrawn | 1 (5) | 1 (7) | 1.00 |
Motivation to donate / accept / wait for deceased donor | |||
Disease progression / prospect of dialysis | 9 (45) | 2 (13) | 0.07 |
Personal benefits | 5 (25) | 7 (47) | 0.18 |
Other donors not possible | 6 (30) | 2 (13) | 0.42 |
Anticipated regret | 2 (10) | ||
Give chance to help | 1 (7) | ||
Concern for donor’s health | 3 (20) | ||
Relationship changes | 4 (27) | ||
Social pressure | |||
Social pressure family | 2 (10) | 1 (7) | 1.00 |
Social pressure doctors | 5 (25) | ||
Internal (personal) pressure | 4 (20) | 1 (7) | 0.37 |
RELATIONSHIP ASPECTS | |||
Expectations of relationship changes | |||
No relationship changes | 3 (15) | 7 (47) | 0.06 |
Positive changes in donor-recipient relationship | |||
· Closer relationship | 1 (5) | 3 (20) | 0.29 |
· Recipient less dependent / more participation in family life | 5 (25) | 1 (7) | 0.21 |
· Having a normal life | 3 (15) | 1(7) | 0.62 |
· Better quality of life of recipient | 2 (10) | ||
Negative changes in donor-recipient relationship | |||
· Fear of imbalance in relationship | 1 (5) | 3 (20) | 0.29 |
· Worries on relationship | 1 (7) | ||
Experienced changes in relationship after surgery | |||
No changes in donor-recipient relationship | 6 (30) | 4 (27) | 1.00 |
Positive changes in donor-recipient relationship | |||
· Having a normal life | 2 (10) | 3 (20) | 0.63 |
· Recipient less dependent / more participation in family life | 5 (25) | 1 (7) | 0.21 |
· Closer relationship | 4 (20) | 8 (53) | 0.04 |
· More frequent contact / attention | 2 (10) | 1 (7) | 1.00 |
Negative changes in donor-recipient relationship | |||
· Imbalance in relationship | 4 (27) | ||
· Mood swings, improved quality of life less than expected | 1 (5) | ||
· Sexuality, insecurity about scars | 2 (10) | 3 (20) | 0.63 |
· Lack of recovery donor, many emotions, depression | 2 (10) | ||
· Recipient wants to justify actions | 2 (10) | ||
· Meddlesomeness donor (‘my kidney’) or others | 4 (20) | 2 (13) | 0.68 |
· More frequent contact | 1 (7) | ||
· Fear for remaining kidney / guilt feelings | 3 (20) | ||
Changed relationship with others | 7 (35) | 7 (47) | 0.49 |