Table 4 Frequency of statements in the focus group sessions; differences between living and deceased donor kidney recipients
Statement categories | Living donor kidney recipients (n = 15) | Deceased donor kidney recipients (n = 12) | p-value |
|---|---|---|---|
DECEASED DONOR KIDNEY TRANSPLANTATION | |||
Information on transplantation with living donor | |||
Received information | 4 (27) | 7 (58) | 0.13 |
Did not want information | 1 (8) | ||
Offer to donate | |||
Spontaneous offer to donate | 13 (87) | ||
Several donors present | 9 (60) | 6 (50) | 0.60 |
Offer refused by recipient | 2 (13) | 4 (33) | 0.36 |
Offer medically unfit for recipient | 6 (40) | 5 (42) | 1.00 |
Offer withdrawn | 1 (7) | ||
No (other) offer | 2 (17) | ||
Did not want any (other) offer | 6 (50) | ||
Motivation to donate / accept / wait for deceased donor | |||
Disease progression / prospect of dialysis | 2 (13) | ||
Personal benefits | 7 (47) | ||
Other donors not possible | 2 (13) | ||
Give chance to help | 1 (7) | ||
Young age of donor | 6 (50) | ||
Concern for donor’s health | 3 (20) | 9 (75) | 0.04 |
Obligation towards donor | 10 (83) | ||
Disease is my responsibility | 3 (25) | ||
Relationship changes | 4 (27) | 9 (75) | 0.01 |
Social pressure | |||
Social pressure family | 1 (7) | ||
Social pressure doctors | |||
Internal (personal) pressure | 1 (7) | ||
RELATIONSHIP ASPECTS | |||
Expectations of relationship changes | |||
No relationship changes | 7 (47) | ||
Positive changes in donor-recipient relationship | |||
· Closer relationship | 3 (20) | 1 (8) | 0.61 |
· Recipient less dependent / more participation in family life | 1 (7) | ||
· Having a normal life | 1(7) | ||
Negative changes in donor-recipient relationship | |||
· Fear of imbalance in relationship | 3 (20) | 10 (83) | 0.01 |
· Worries on relationship | 1 (7) | ||
· Disappointment no offer | 1 (8) | ||