| Measured characteristics or constructs | Measurement instrument | Answer categories or scales | α1 |
---|---|---|---|---|
Socio-demographics | Age | Â | Â | Â |
Gender | Â | Male/Female | Â | |
Educational level | Â | Low/High | Â | |
Disease-related characteristics | Age at diagnosis |  | 0 years/1–5 years/6–12 years/13–16 years |  |
Treatment type | Â | Pre-dialysis/Haemodialysis/Peritoneal dialysis/Kidney transplantation/ | Â | |
Other | ||||
Limitations in mobility | Medical outcomes Study (MOS) 6-Items Short Form Health Survey [42] | 3-point scale: 1 = severely limited/2 = somewhat limited/3 = not limited at all | .78 | |
Self-management and social participation | General self-efficacy | 10-item General Self-Efficacy Scale [43] | 4-point Likert scale: 1 = not right/2 = hardly right/3 = somewhat right/4 = totally right | .71 |
Disease-related self-efficacy | 16-item2 On Your Own Feet Self-Efficacy Scale (OYOF-SES) [44] | 4-point Likert scale:1 = yes certainly/2 = yes probably/3 = no probably not/4 = no, definitely not | .90 | |
Health-related quality of life | 37-item European DISABKIDS condition generic questionnaire (DCGM-37) [45] with six domains: independence (I), social inclusion (SI), social exclusion (SE), emotion (E), physical (P), medication (M); and a general score (range: 0–100) | 5-point Likert scale: 1 = often/2 = quite often/3 = sometimes/4 = almost never/5 = never | I: .86 | |
SI: .70 | ||||
SE: .85 | ||||
E: .81 | ||||
P: .46 | ||||
M: .79 | ||||
Social participation | Rotterdam Transition Profile (RTP) [46] with seven life areas: school/work, finances, (independent) living, (intimate) relationships, leisure, and mobility | Four transition (to adulthood) phases (0–3)3 | na4 | |
Camp COOL | Influence of living with the condition | 10 items Effects of CC Scale See Additional file 1. | 5-point Likert scale: 1 = completely disagree/2 = disagree/3 = somewhat agree/4 = agree/5 = completely agree | .92 |
Value of peer-to-peer (i.e. buddy-to-attendee) support | Value of peer-to-peer support (2 items for buddies and 2 items for attendees) See Additional file 1. | 5-point Likert scale: 1 = completely disagree/2 = disagree/3 = somewhat agree/4 = agree/5 = completely agree |  | |
Overall liking score for CC |  | 10-point Visual Analogue Scale: 1 = lowest possible liking/10 = highest possible liking |  |