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Table 3 Content and psychometrics of the measurement instruments (questionnaire)

From: Effective peer-to-peer support for young people with end-stage renal disease: a mixed methods evaluation of Camp COOL

 

Measured characteristics or constructs

Measurement instrument

Answer categories or scales

α1

Socio-demographics

Age

   

Gender

 

Male/Female

 

Educational level

 

Low/High

 

Disease-related characteristics

Age at diagnosis

 

0 years/1–5 years/6–12 years/13–16 years

 

Treatment type

 

Pre-dialysis/Haemodialysis/Peritoneal dialysis/Kidney transplantation/

 

Other

Limitations in mobility

Medical outcomes Study (MOS) 6-Items Short Form Health Survey [42]

3-point scale: 1 = severely limited/2 = somewhat limited/3 = not limited at all

.78

Self-management and social participation

General self-efficacy

10-item General Self-Efficacy Scale [43]

4-point Likert scale: 1 = not right/2 = hardly right/3 = somewhat right/4 = totally right

.71

Disease-related self-efficacy

16-item2 On Your Own Feet Self-Efficacy Scale (OYOF-SES) [44]

4-point Likert scale:1 = yes certainly/2 = yes probably/3 = no probably not/4 = no, definitely not

.90

Health-related quality of life

37-item European DISABKIDS condition generic questionnaire (DCGM-37) [45] with six domains: independence (I), social inclusion (SI), social exclusion (SE), emotion (E), physical (P), medication (M); and a general score (range: 0–100)

5-point Likert scale: 1 = often/2 = quite often/3 = sometimes/4 = almost never/5 = never

I: .86

SI: .70

SE: .85

E: .81

P: .46

M: .79

Social participation

Rotterdam Transition Profile (RTP) [46] with seven life areas: school/work, finances, (independent) living, (intimate) relationships, leisure, and mobility

Four transition (to adulthood) phases (0–3)3

na4

Camp COOL

Influence of living with the condition

10 items Effects of CC Scale See Additional file 1.

5-point Likert scale: 1 = completely disagree/2 = disagree/3 = somewhat agree/4 = agree/5 = completely agree

.92

Value of peer-to-peer (i.e. buddy-to-attendee) support

Value of peer-to-peer support (2 items for buddies and 2 items for attendees) See Additional file 1.

5-point Likert scale: 1 = completely disagree/2 = disagree/3 = somewhat agree/4 = agree/5 = completely agree

 

Overall liking score for CC

 

10-point Visual Analogue Scale: 1 = lowest possible liking/10 = highest possible liking

 
  1. 1α = Cronbach’s Alpha.
  2. 2This instrument originally consists of 17 items assigned to knowledge, coping and skills for hospital consultations. However, one item about expecting to be ready for the transfer to adult care was deleted, because it did not apply to our full sample.
  3. 3Young persons in phases 0 and 1 are still fully dependent on adults, e.g. parents, or display typical child behaviour. Young persons in phase 2 experiment with adult behaviour or orient to it. Phase 3 refers to full autonomy in participation. Because we were interested in successful transition to adulthood, the phases were dichotomised as follows: 0 = phases 0–2, 1 = phase 3.
  4. 4Construct validity was established in a previous study [45].
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BMC Nephrology

ISSN: 1471-2369

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