Table 3 Content analysis of questionnaire free text data

Expertise/Professionalism

23

23

0

• We felt very lucky to have been referred and have the opportunity to talk with a panel of consultants

• It was fantastic to feel we had the best of advice in all areas and that a specialist from all areas was there

• Three consultants were extremely well informed and we found their opinion and level of expertise both beneficial and reassuring

Information/understanding

20

18

2

• If we had any questions or didn’t understand they clarified things

• It enabled me to understand the condition of my kidneys and to accept the problems I might be facing

• I decided not to go through with it and I’m not sure that’s right

Access to services

13

11

2

• It felt like it took a long time to reach the right people

• Letter was useful with both pregnancies at local hospital

Decision-making

12

10

2

• It is an important decision and it was – and still is – very reassuring to know that the decision we took was with the best information

• If it had not been for the clinic and reassurance from consultants that it was safe to fall pregnant we probably would not have tried

Emotional response

9

4

5

• I found this quite stressful and frightening

• The risks scared me so much

• It made me feel safe

Individualised care

7

5

2

• I have other medical problems as well and the doctors were able to give me some very informed advice

• All concerns were taken seriously

• My thoughts and view were not taken into consideration