Table 2 Data summary for reported registries (n = 48)
From: A global overview of renal registries: a systematic review
Region | Registry Name (Common Abbreviation), Year Established | Accessibility | Patient-level data availability | Treatments | Outcomes |
|---|---|---|---|---|---|
Asia/Pacific (n = 8) | Australia and New Zealand Dialysis and Transplant Registry (ANZDATA), 1963 | +++ | ++ | +++ | +++ |
Hong Kong Renal Registry (HKRR), 1995 | + | + | +++ | +++ | |
Korean Renal Registry, 1985 | ++ | ++ | +++ | +++ | |
Malaysian National Renal Registry (NRR), 1993 | ++ | +++ | +++ | +++ | |
Shanghai Dialysis Registry, 1996 | + | + | ++ | +++ | |
Singapore Renal Registry, 2001 | +++ | ++ | +++ | +++ | |
Taiwan Renal Registry Data System (TWRDS), 1987 | + | + | +++ | + | |
Thailand Renal Replacement Therapy Registry (TRT), 1997 | ++ | + | +++ | + | |
Europe (n = 23) | Austrian Dialysis and Transplant Registry (OEDTR)*, ≤ 1990 | ++ | + | ++ | +++ |
Belgian Society of Nephrology (Dutch-speaking) (NBVN)*, ≤ 1996 | ++ | ++ | +++ | + | |
Catalan Renal Registry (RMRC)*, 1984 | ++ | + | ++ | +++ | |
Danish Registry on Regular Dialysis and Transplantation (DNSL)*, 1990 | +++ | +++ | +++ | +++ | |
Dutch Renal Registry (RENINE), 1986 | ++ | + | ++ | +++ | |
European Renal Association - European Dialysis and Transplant Association (ERA-EDTA), 1963 | +++ | ++ | +++ | +++ | |
Finnish Registry for Kidney Diseases*, 1964 | +++ | +++ | +++ | +++ | |
French Renal Epidemiology and Information Network (REIN), 2002 | ++ | + | +++ | +++ | |
Greek Registry (Hellenic Society of Nephrology)*, 2000 | + | + | + | + | |
Groupement des Nephrologues Francophones de Belgique (GNFB), 1995 | ++ | + | ++ | +++ | |
Italian Dialysis and Transplant Registry (RIDT)*, 1996 | +++ | + | ++ | +++ | |
Norwegian Renal Registry*, 1994 | ++ | +++ | ++ | +++ | |
Peritoneal Dialysis Board Registry (GSDP), ≤ 2001 | ++ | + | +++ | +++ | |
Portuguese Society of Nephrology*, 1997 | ++ | + | ++ | +++ | |
Romanian Renal Registry (RRR)*, 1993 | + | ++ | ++ | + | |
Russian Registry*, 1998 | ++ | + | +++ | +++ | |
Scottish Renal Registry (SRR)*, 1991 | +++ | +++ | +++ | +++ | |
Spanish Society of Nephrology Register (Peritoneal Dialysis Registry) (SEN), 1997 | ++ | + | ++ | ++ | |
Spanish Society of Nephrology Register (Records of Renal Patients [GRER]), 1997 | ++ | + | +++ | +++ | |
Swedish Renal Registry (SNR/SRR)*, 2007 | ++ | ++ | ++ | +++ | |
Turkish National Registry (TSNRR)*, 1990 | ++ | + | +++ | +++ | |
United Kingdom Renal Registry (UKRR)*, 1997 | +++ | +++ | +++ | +++ | |
Valencian Renal Registry*, 1992 | +++ | ++ | +++ | +++ | |
Latin/South America (n = 5) | Sociedad Argentina de Nefrologia (SAN)/Instituto Nacional Central Unico Coordinator de Ablación e Implante (INCUCAI); 2004 | +++ | +++ | +++ | +++ |
Brazilian Registry of Dialysis (RBD/SBN), 1998 | + | + | ++ | +++ | |
Colombia Healthcare Database, ≤ 2008 | +++ | +++ | ++ | + | |
Latin American Dialysis and Transplantation Registry (SLANH/RLDT), 1991 | ++ | + | ++ | + | |
Uruguayan Registry of Dialysis, 1981 | +++ | +++ | +++ | +++ | |
Middle East (n = 1) | United Arab Emirates Renal Diseases Registry, 1980 | + | + | + | + |
North America (n = 7) | British Columbia Renal Database - Patient Records and Outcome Management Information System (PROMIS), 2003 | + | +++ | ++ | + |
Canadian Organ Replacement Register (CORR), 1994 | +++ | +++ | +++ | ++ | |
Canadian Pediatric End-Stage Renal Disease Database, ≤ 2010 | ++ | + | + | + | |
Database of the Renal Research Institute (MONDO), 2000 | ++ | + | ++ | + | |
North American Pediatric Renal Trials and Collaborative Studies (NAPRTCS), 1987 transplant only, HD/PD as of 1992 | +++ | + | +++ | +++ | |
The Renal Disease Registry (TRDR/ORN), 1981 | ++ | + | +++ | +++ | |
US Renal Data System (USRDS), 1988 | +++ | ++ | +++ | +++ | |
Multiregional (n = 4) | Dialysis Outcomes and Practice Patterns Study (DOPPS), 1996 | +++ | ++ | ++ | ++ |
French Language Peritoneal Dialysis Registry (RDPLF), ≤ 1995 | +++ | +++ | +++ | +++ | |
International Pediatric Peritoneal Dialysis Network Registry (IPPN), 2007 | + | +++ | +++ | + | |
International Quotidian Dialysis Registry (IQDR), 2003 | ++ | + | +++ | + |