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Table 1 Schedule of Assessments

From: PAlliative Care in chronic Kidney diSease: the PACKS study—quality of life, decision making, costs and impact on carers in people managed without dialysis

Table 1

Screening

Visit (1)

Visit (2)

Visit (3)

Visit (4)

Baseline

3 months

6 months

9 months

12 months

PATIENT

     

Informed Consent

X

    

Inclusion/Exclusion Criteria

X

    

Demographic Data

X

    

Detail from patient’s hospital notes on who made decision to accept CM

x

    

Davies Comorbidity Score

x

x

x

x

x

9-point Clinical Frailty Scale

x

x

x

x

x

6 Item Cognitive Impairment Test (6CIT)

x

x

x

x

x

Functional performance using the PPS

x

x

x

x

x

KDQOL

x

x

x

x

x

EQ-5D-5L

x

x

x

x

x

POS-S Renal

x

x

x

x

x

DCS

x

 

x

 

x

Patient Service Use Log

x

x

x

x

x

Serum creatinine, albumin, calcium, phosphate, parathyroid hormone, alkaline phosphatase and haemoglobin level

x

x

x

x

x

Urine protein creatinine ratio

x

x

x

x

x

Liver function tests

x

x

x

x

x

Smoking habits of patient

x

x

x

x

x

Smoking habits of other people living in household

x

x

x

x

x

Diabetes and diabetic comorbidity check

x

x

x

x

x

Check for Ischemic heart disease, angina, myocardial infarction, percutaneous coronary Intervention, coronary artery bypass graft, peripheral vascular disease, cerebrovascular accidents in all patients.

x

x

x

x

x

Answer question ‘Would you be surprised if patient dies within 6 months?

x

x

x

x

x

CARER

     

Informed Consent

x

    

Inclusion/Exclusion Criteria

x

    

EQ-5D-5L

x

x

x

x

x

EQ-5D-5L for the patient by the carer (i.e. by proxy)

x

x

x

x

x

DCS

x

 

x

 

x

Carer baseline questionnaire

x

    

Follow up carer questionnaires

 

x

x

x

x

RENAL PHYSICIAN/ CLINICAL NURSE SPECIALISTS

At one point during study

Qualitative interview