Table 1 Questionnaire items and sets used in pilot study

Transplant Decision Making Survey (TDMS) [22]

X

Distress Assessment and Response Tool (DART) [48]

X

X

Experience in Close Relationship Scale (ECR) [27]

X

Relationship Questionnaire (RQ) [30, 31]

X

X

X

Short Literacy Survey (SLS) [50]

X

X

X

MOS Social Support [32]

X

Illness Intrusiveness Rating Scale (IIRS) [18,19,20,21]

X

X

Kidney Disease Quality of Life Questionnaire [36]

X

Patient Response Questionnaire

X

X

X

X

Socio-demographic Questionnaire

X

X

X

X

Estimated average completion time

42 min

32 min

32 min

33 min