Table 2 Perceived barriers to involvement in dialysis decision-making
Perceived barrier | Exemplary quote |
|---|---|
Clinical directive/physiological contraindications | “First I was put on peritoneal dialysis, but, but PD catheter didn’t work…it was a disaster so now I am on haemodialysis.” (PID 3.01, Female, 61–80 years, Philippines, English) |
Insufficient information provision | “No one supported me. I would have felt better supported from the medical staff if I had enough information.” (PID 4.11, 20–40 years, Male, Lebanon, Arabic) |
Paternalistic ideologies | “I didn’t have much choice of which one I can take. I had to take the one which my doctor recommended…There are occasions where I said ‘I didn’t want’ and all that, but then at the end of the day, they have their way [laughter].” (PID 3.05, Male, 61–80 years, India, English) |
Time pressures | “…did not give me enough time to decide over the options. It went very fast from first information session and starting dialysis.” (PID 4.06, Female, 41–60 years, Tonga, English) |
Lack of awareness of different options | “All they do is talk about among themselves, so I was in the dark what, what is to be done.” (PID 2.01, Male, 81–90 years, Malaysia, English) |