Table 1 Topic guide
Interview topic | Areas covered |
|---|---|
Background | Age |
Social circumstances | |
Duration of kidney problem | |
Duration of attendance at nephrology department | |
Current functional ability | |
Understanding of illness | Understanding of their kidney disease |
Illness impact | How the kidney disease is affecting them, including:• Overall impact on their life • Particular effects – both physical and psychological • What is changing for them • Impact patient perceives on family/carers |
The relative importance of the different factors described [Prompt: the role of symptoms] | |
How they see the illness affecting them in the future | |
Information and decision-making | Experiences of illness information and involvement in healthcare decisions, including: • Factors influencing the experiences • Relative importance of these factors • Anything which might cause a future change in decision • Prompt regarding dialysis decision if not spontaneously introduced |