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Table 1 Data and metrics included in the chronic kidney disease registry

From: Development of an electronic health record-based chronic kidney disease registry to promote population health management

 

Definition (if applicable)

Categorization (if applicable)

Patient Characteristics

 Age

  

 Sex

  

 Race

 

White; African-American; Hispanic; Other

 Comorbidities

 

Diabetes; HTN; CHF; CVD; COPD; Asthma; Obesity

 Insurance

 

Medicare; Medicaid; Commercial; Other; Unknown

 PCP

 

Name, last date of visit

 Nephrologist

 

Name, last date of visit

Disease Characteristics

 CKD stage

 

Stages 3A, 3B, 4, 5, 5D

 Kidney failure risk score

2- and 5- year risk of progression to ESRDa

2-year, 5-year risk of progression

 Rate of eGFR change

% change in eGFR by at least 90 days

 

Laboratory Data

 Serum creatinine

 

Continuous by mg/dl

 eGFRb

 

Continuous by ml/min/1.73 m2

Metrics

 ED Visits, n/per year

  

 Inpatient Visits, n/per year

  

 Outpatient PCP Visits, n/per year

  

 Outpatient Nephrology Visits, n/per year

  

 Annual creatinine

 

Yes or no, date obtained, value

 Annual urine protein testing

 

Yes or no, date obtained, value

 Blood pressure control

 

Yes, no, or unknown

 ACE-I/ARB use

 

Yes, no, or not applicablec

 Nephrotoxin status

Review of patient electronic medication list for presence of any one of several medications thought to be unsafe in patients with CKD, based on KDIGO guidelines and CKD collaborative consensus

1. Prescribed no renally unsafe medications

2. Prescribed potentially unsafe medications

3. Prescribed renally unsafe medication (eGFR ≤30)

 Hepatitis B immunity status

 

1. Immune by HbsAb

2. Immunization received

3. Not immune by HBsAb

 Patient reported outcome measures (PROMs)

 

Completed, not completed, scores

 Placement of AVF/AVGd

 

Yes, no

 Transplant statuse

 

1. None

2. Referral

3. Evaluation

4. Waitlist

5. Transplanted

  1. Abbreviations: EHR Electronic health record, HTN Hypertension, CHF Congestive heart failure, CVD Cardiovascular disease, including coronary artery disease, peripheral vascular disease and stroke, COPD Chronic obstructive pulmonary disease, PCP Primary care provider, ACE-I Angiotensin converting enzyme inhibitor, ARB Angiotensin receptor blocker, AVF Arteriovenous fistula, AVG Arteriovenous graft
  2. aBased on Tangri et al. Multinational Assessment of Accuracy of Equations for Predicting Risk of Kidney Failure: A Meta-analysis. JAMA 2016
  3. Patients included based on presence of eGFR and urine protein quantification separated by less than or equal to 1 year (total of 5487 patients)
  4. bPrior to March 2018, the EHR calculated eGFR using the Modification of Diet in Renal Disease (MDRD) equation; subsequently, the EHR has utilized the Chronic Kidney Disease Epidemiology Collaboration (CKD-EPI) serum creatinine equation; adjusted for African American race by multiplying generic eGFR values by 1.212
  5. c“not applicable” if patient did not have hypertension, diabetes, or proteinuria, or if they did have last serum potassium > 5.0 meq/L, bilateral renal artery stenosis, documented nephrotoxic reaction to ACE-I/ARB, documented angioedema or swelling reaction to ACE-I/ARB, or were pregnant
  6. dPresence of a CPT code, ICD-10 or dialysis access documentation field within EHR for AVF and/or AVG
  7. ePresence of “transplant status” field within EHR