Topics | Answer options | Area perceived to be important (N; %) | Answer options | Area of importance addressed by NP (N; %) | ||||||||
---|---|---|---|---|---|---|---|---|---|---|---|---|
T0 | T1 | C | P-value – Wilcoxon test (T0-T1) | P-value – Chi square (C-T1) | T0 | T1 | C | P-value – Wilcoxon test (T0-T1) | P-value – Chi square (C-T1) | |||
(Unpaid) work or education | Not important | 7 (46.7) | 5 (31.3) | 15 (50.0) | 0.380 | 0.384 | Not addressed | 7 (53.9) | 4 (26.7) | 19 (63.3) | 0.083 | 0.012 |
Important | 8 (53.3)a | 11 (68.8) | 15 (50.0)c | Addressed | 6 (46.1)c | 11 (73.3)a | 11 (36.7)c | |||||
Social contacts and relationships | Not important | 3(20.0) | 4 (25.0) | 13 (43.3) | 0.763 | 0.239 | Not addressed | 6 (46.1) | 4 (26.7) | 16 (51.6) | 0.052 | 0.000 |
Important | 12 (80.0)a | 12 (75.0) | 17 (56.7)c | Addressed | 7 (53.9)c | 11 (73.3)a | 15 (48.4)b | |||||
Sexuality | Not important | 8 (53.3) | 5 (31.3) | 21 (70.0) | 0.166 | 0.016 | Not addressed | 9 (69.2) | 6 (40.0) | 27 (87.1) | 0.096 | 0.002 |
Important | 7 (46.7)a | 11 (56.8) | 9 (30.0)c | Addressed | 4 (30.8)c | 9 (60.0)a | 4 (12.9)b | |||||
(Adjustment of) leisure activities | Not important | 0 (0.0) | 2 (12.5) | 12 (40.0) | 0.527 | 0.036 | Not addressed | 2 (16.7) | 1 (6.3) | 17 (54.8) | 0.257 | 0.002 |
Important | 15 (100.0)a | 14 (87.5) | 18 (60.0)c | Addressed | 10 (83.3)d | 15 (93.7) | 14 (45.2)b | |||||
Practical matters in daily life (e.g. household) | Not important | 4 (26.7) | 3 (18.8) | 13 (41.9) | 0.132 | 0.088 | Not addressed | 3 (23.1) | 3 (20.0) | 21 (72.4) | 0.564 | 0.001 |
Important | 11 (73.3)a | 13 (81.2) | 18 (58.1)b | Addressed | 10 (76.9)c | 12 (80.0)* | 8 (27.6)d | |||||
Transport and mobility | Not important | 5 (33.3) | 6 (37.5) | 16 (53.3) | 0.803 | 0.455 | Not addressed | 5 (28.5) | 5 (33.3) | 21 (72.4) | 0.705 | 0.009 |
Important | 10 (66.7)a | 10 (62.5) | 14 (46.7)c | Addressed | 8 (61.5)c | 10 (66.7)* | 8 (27.6)d | |||||
Personal care (e.g. washing, dressing) | Not important | 7 (46.7) | 5 (31.3) | 13 (43.3) | 0.160 | 0.671 | Not addressed | 8 (57.1) | 5 (31.3) | 20 (66.7) | 0.057 | 0.005 |
Important | 8 (53.3) a | 11 (68.7) | 17 (56.7)c | Addressed | 6 (42.9)b | 11 (68.7) | 10 (33.3)c | |||||
Adjusting lifestyle (e.g. nutrition, exercise) | Not important | 2 (20.0) | 1 (6.3) | 9 (30.0) | 0.527 | 0.038 | Not addressed | 4 (30.8) | 2 (12.5) | 11 (37.9) | 0.107 | 0.009 |
Important | 13 (80.0)a | 15 (93.7) | 21 (70.0)c | Addressed | 9 (69.2)c | 14 (87.5) | 18 (62.1)d | |||||
Psychological well-being | Not important | 1 (6.7) | 2 (12.5) | 7 (23.3) | 0.783 | 0.003 | Not addressed | 5 (35.7) | 2 (12.5) | 16 (55.2) | 0.021 | 0.003 |
Important | 14 (93.3)a | 14 (87.5) | 23 (76.7)c | Addressed | 9 (64.3)b | 14 (87.5) | 13 (44.8)d | |||||
Dealing with the chronic condition | Not important | 1 (6.7) | 1 (6.7) | 3 (9.7) | 0.564 | 0.167 | Not addressed | 2 (14.3) | 0 (0.0) | 11 (37.9) | 0.025 | 0.001 |
Important | 14 (93.3)a | 14 (93.3)a | 28 (90.3)b | Addressed | 12 (85.7)b | 16 (100.0) | 18 (62.1)d | |||||
Dealing with lack of understanding of others | Not important | 5 (33.3) | 2 (13.3) | 10 (32.3) | 0.119 | 0.015 | Not addressed | 9 (64.3) | 5 (33.3) | 21 (72.4) | 0.053 | 0.002 |
Important | 10 (66.7)a | 13 (86.7)a | 21 (67.7)b | Addressed | 5 (35.7)b | 10 (66.7)a | 8 (27.6)d | |||||
(re)inting normal life | Not important | 1 (6.7) | 2 (12.5) | 3 (9.7) | 1.00 | 0.030 | Not addressed | 3 (21.4) | 1 (6.3) | 12 (40.0) | 0.046 | 0.000 |
Important | 14 (93.3)a | 14 (87.5) | 28 (90.3)b | Addressed | 11 (78.6)b | 15 (93.7) | 18 (60.0)c | |||||
Medical issues around the condition | Not important | 2 (13.3) | 1 (6.3) | 2 (6.4) | 0.564 | 0.922 | Not addressed | 2 (14.3) | 0 (0) | 2 (7.1) | 0.157 | 0.022 |
Important | 13 (86.7)a | 15 (93.7) | 29 (93.6)b | Addressed | 12 (85.7)b | 16 (100.0) | 26 (92.9)e | |||||
Referral to other health care professionals (if needed) | Not important | 5 (33.3) | 1 (6.3) | 1 (3.1) | 0.480 | 0.446 | Not addressed | 1 (7.2) | 1 (6.3) | 8 (26.7) | 0.083 | 0.044 |
Important | 10 (66.7)a | 15 (93.7) | 31 (96.9)a | Addressed | 13 (92.9)b | 15 (93.7) | 22 (73.3)c | |||||
Being in control with own treatment process | Not important | 1 (6.7) | 0 (0.0) | 1 (3.1) | 0.480 | 0.216 | Not addressed | 1 (7.2) | 1 (6.3) | 10 (35.3) | 0.046 | 0.002 |
Important | 14 (86.7)a | 16 (100.0) | 31 (96.9)a | Addressed | 13 (92.9)b | 15 (93.7) | 20 (66.7)c |