Table 1 Schedule of assessments for immediate treatment group

Day

0

28

84

168

336

504

Eligibility Criteria

x

Demographics

x

CKD Information

x

x

x

x

x

x

Medical History

x

x

x

x

x

x

Physical Examination

x

x

x

x

x

x

Bloods

x

x

x

x

Immunosuppressive Medications

x

x

x

x

x

x

Concomitant Medications

x

x

x

x

x

x

SRH (Child and Caregiver)

x

x

x

x

x

x

Educational Background

x

School Absenteeism

x

x

x

x

x

x

HUI Questionnaire

x

x

x

x

x

x

Caregiver Satisfaction Questionnaire (Caregiver)

x

x

x

x

x

x

Patient Navigator Satisfaction Questionnaire (Caregiver)

x

x

x

Adverse events

x

x

x

x

x

Hospitalisation

x

x

x

x

x

Data linkage (NDI, ANZDATA, MBS, PBS)

x

Qualitative interviews/questionnaires (subset of participants only)

x

x

x

x