Table 2 Older patients’ experiences with the shared decision-making process on choosing dialysis or conservative care
Choice for dialysis (n = 75) | Choice for conservative care (n = 24) | P value | |
|---|---|---|---|
Did you have prior thoughts on preferred treatment before counselling started?a | 27/74 (37%) | 7/24 (29%) | 0.51 |
Do you think counselling was started at the right time?a | 63/70 (90%) | 19/21 (91%) | 1.00 |
Do you think there was enough time to make a treatment decision? | 0.66 | ||
Positive answer | 57/72 (79%) | 20/23 (87%) | |
Neutral answer | 14/72 (19%) | 3/23 (13%) | |
Negative answer | 1/72 (1%) | 0/23 (0%) | |
Did you feel forced to make a decision?a | 23/74 (31%) | 1/22 (5%) | 0.01 |
Was the possibility mentioned to postpone a decision?a | 28/72 (39%) | 15/21 (71%) | 0.008 |
Do you think you had enough information to choose whether or not to start dialysis? | 0.23 | ||
Positive answer | 59/73 (81%) | 16/22 (73%) | |
Neutral answer | 14/73 (19%) | 5/22 (23%) | |
Negative answer | 0/73 (0%) | 1/22 (5%) | |
Did you miss information?a | 4/63 (6%) | 3/18 (17%) | 0.18 |
Was withholding dialysis discussed as treatment option?a | 36/72 (50%) | 19/22 (86%) | 0.002 |
Did you receive sufficient guidance?a | 65/68 (96%) | 20/21 (95%) | 1.00 |
Did you feel supported by your doctor and/or nurse in your choice? | 0.06 | ||
Positive answer | 60/71 (85%) | 16/22 (73%) | |
Neutral answer | 11/71 (15%) | 4/22 (18%) | |
Negative answer | 0/71 (0%) | 2/22 (9%) | |
Did you feel supported by your partner and/or relatives in your choice? | 0.74 | ||
Positive answer | 56/66 (85%) | 18/22 (82%) | |
Neutral answer | 10/66 (15%) | 4/22 (17%) | |
Negative answer | 0/66 (0%) | 0/22 (0%) | |
How much confidence did you have in your doctor’s advice whether or not to start dialysis? | 0.13 | ||
Positive answer | 65/71 (92%) | 18/23 (78%) | |
Neutral answer | 6/71 (9%) | 5/23 (22%) | |
Negative answer | 0/71 (0%) | 0/23 (0%) | |
Whose opinion was most important in making your decision? (choose one) | 0.02 | ||
Myself | 34/62 (55%) | 17/19 (90%) | |
My nephrologist and/or nurse | 22/62 (36%) | 2/19 (11%) | |
My partner and/or family | 6/62 (10%) | 0/19 (0%) | |
Do you still have doubts about your treatment decision?a | 12/70 (17%) | 0/23 (0%) | 0.03 |
Do you think decision-making could have been better?a | 8/69 (12%) | 4/19 (21%) | 0.28 |