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Table 2 Table caption

From: Vascular access-specific health-related quality of life impacts among hemodialysis patients: qualitative development of the hemodialysis access-related quality of life (HARQ) instrument

Selected quotes

Concern / Access type referenced

I'm “terrified because my interventions are so frequent”

Durability / General

It is “always on my mind: will it last, will I run out of places to put an access?”

Durability / General

“It was scary” having that (blood stream) infection

Infections / CVC

You're “waiting for a miracle while it is maturing”

Maturation / General

You “have to make sure that you maintain it and clean it to avoid infection”

Infections / General

I worry about the skills of the techs, they're like an enemy to me

Care at clinic / General

all nurses are different so you need to worry about who to go to and to trust

Care at clinic / AVF

“those needles do not feel good”

Pain / AVG

The “thrill will wake you up”

Sleep / AVF

You can't wear nice clothes and it’s a bummer. No low cut tops

Appearance / General

When I go to parties I don't want to answer the questions

Social interactions / AVF

“A person once told me that I have the 'sign of the beast' on me”

Social interactions / AVF

“I feel weird if I get touched.”

Intimacy / AVF

I “did not like the way it felt when I went running”

Recreation / CVC

“Clots and other interventions just take time, time away from family”

Time burden / AVF

My access “makes it difficult to act as a parent sometimes”

Family interaction / General