Selected quotes | Concern / Access type referenced |
---|---|
I'm “terrified because my interventions are so frequent” | Durability / General |
It is “always on my mind: will it last, will I run out of places to put an access?” | Durability / General |
“It was scary” having that (blood stream) infection | Infections / CVC |
You're “waiting for a miracle while it is maturing” | Maturation / General |
You “have to make sure that you maintain it and clean it to avoid infection” | Infections / General |
I worry about the skills of the techs, they're like an enemy to me | Care at clinic / General |
all nurses are different so you need to worry about who to go to and to trust | Care at clinic / AVF |
“those needles do not feel good” | Pain / AVG |
The “thrill will wake you up” | Sleep / AVF |
You can't wear nice clothes and it’s a bummer. No low cut tops | Appearance / General |
When I go to parties I don't want to answer the questions | Social interactions / AVF |
“A person once told me that I have the 'sign of the beast' on me” | Social interactions / AVF |
“I feel weird if I get touched.” | Intimacy / AVF |
I “did not like the way it felt when I went running” | Recreation / CVC |
“Clots and other interventions just take time, time away from family” | Time burden / AVF |
My access “makes it difficult to act as a parent sometimes” | Family interaction / General |