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Table 1 Overview of websites, key publications (2 are shown) and data reports of national and/or regional kidney biopsy registries included in this study

From: Coding practice in national and regional kidney biopsy registries

 

Identified registries or data repositories

Website

Publications (see references)

Data Reports

1

British Columbia Glomerulonephritis Network

http://www.bcrenalagency.ca/health-professionals/professional-resources/promis

[9, 10]

2

Czech Registry of Renal Biopsies

http://www.nefrol.cz/en/experts/renal-biopsy-registry

[11]

3

Flemish Collaborative Glomerulonephritis Group Registry

http://www.nbvn.be/blog/organisatie/fcgg-in-english

[12]

https://www.renalconference2018.com/images/Presentaties/Zaterdag/Wim_Laurens-Ame%CC%81lie_Dendooven%E2%80%93FCGG_Flemisch_Collaborative_Glomerulonephritis_Group_Current_status_of_the_Registry_and_Future_Perspectives.pdf

4

Italian Registry of Renal Biopsies

http://www.irrb.net/

[13, 14]

5

Japanese Renal Biopsy Registry (J-RBR)

[15, 16].

Japan Renal Biopsy Registry and Japan Kidney Disease Registry: Committee Report for 2009 and 2010.

Sugiyama H et al.

Clin Exp Nephrol. 2013;17:155–73.

6

Limburg Renal Registry

[17, 18]

7

Malaysian Registry of Renal Biopsy

https://www.macr.org.my/emrrb/zAu_login.jsp

https://www.msn.org.my/nrr/mrrb_report.jsp

8

National Pathology Database Denmark (PATOBANK)

http://www.patobank.dk/index.php?ID=1&lang=da

[19, 20]

https://www.patobank.dk/

9

Norwegian Renal Registry

http://www.nephro.no/nnr.html

[21, 22]

https://www.nephro.no/nnr/AARSRAPPORT_NNR_2018_ToC.pdf

10

Philippine Renal Disease Registry

http://www.nkti.gov.ph/index.php/services/specialty-centers/renal-disease-control-program-redcop

On request via National Kidney and Transplantation Initiative, Philippines

11

Polish Registry of Kidney Biopsies

[23, 24]

12

Scottish Renal Biopsy Registry

http://www.srr.scot.nhs.uk/Biopsy-Registry/Main.html

[25, 26]

https://www.srr.scot.nhs.uk/Biopsy-Registry/Main.html

13

Spanish Renal Registry

https://www.senefro.org/modules.php?name=home&lang=ES

[27, 28]

https://www.senefro.org/contents/webstructure/REGN2019_2_.pdf

14

Swedish Renal Registry

https://www.medscinet.net/snr/default.aspx?lang=1

[29, 30]

https://www.medscinet.net/snr/rapporterdocs/Svenskt%20Njurregister%20A%CC%8Arsrapport%202019.pdf

15

Uruguayan Registry of Glomerular Diseases

[31, 32]

https://www.nefrologia.hc.edu.uy/index.php/prevencion-glomerulopatias

16

National Renal Biopsy Registry, Taiwan

https://www.tsn.org.tw/enVersion/about.aspx

[33]