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Table 3 Sample responses from each participant goal category

From: The stay strong app as a self-management tool for first nations people with chronic kidney disease: a qualitative study

Connect with family or other people

• See more family from out of town to feel more connected and less disconnected from country

• Keep credit on my phone so I can call my family and friends

• Arrange women’s meeting regularly when not on dialysis days [so I can] have a yarn with other ladies, make craft, feel productive like in Broome WA (Western Australia)

• Get my Wi-Fi back on [so I can] talk to my family via Facebook, play games again

Go home be on country

• Go back and see country [so I can] do fishing, camping, watching sea gulls, drinking tea, going hunting

• Go back to community and eat good bush tucker* [so I can] feel good and happy to be on country and see family

Go bush/be outdoors

• Go hunting, get some bush tucker* [so I can] sit down and listen to birds, get bush tucker, get out and cook bush potatoes

• Go turtle hunting with family [to be] feeling good, happy when go with family

Lose weight/eat healthy food

• Come to exercise group at dialysis or Danila Dilba* [because its] good for body, losing weight, feel healthy, get out of house

• Go dig for yams [because] bush tucker* is good for body

Exercise/improve mobility

• Be able to walk again with prosthetic leg to work my body again, to get healthy

• Get more exercise [because it will] make me strong and healthy so can feel good about myself

Do craft /art/music/reading

• Do some weaving, make mats, dilly bags* [because its] connection with culture

• Do shell painting with Tiwi Children [so I can] teach young one’s culture, feel good

Change accommodation

• Find somewhere to live away from hospital, get outside [so I can] be happy, see more family

• Move out of hostel [because] I’d feel safer and will be with family)

Have less physical discomfort

• Get bush medicine* [so I can] stop itching and feel more relaxed

• Get eyes fixed-so I can see better, feel more independent

Attend ceremony/sorry business

• Go home for funeral [so I can] pay respect, support family

• Go to APY homelands* for funeral [so I can] see family, pay respect, say goodbyes

Have a kidney transplant

• Stay healthy for transplant [so I can] go back home

• Get a transplant to live a normal life and travel

Have less substance use worry

• Think about quitting smoking for my kidneys and health

• Stop drinking grog [to have] no more headache or stomach pain, better sleep, better walking

Have less gambling worry

• Not use all my money in gambling so I can have some for shopping

  1. *Bracketed additions represent prompts within the app
  2. *Bush food or bush tucker is any food native to Australia taken from land and sea and used as sustenance by First Nations Australians
  3. *Danila Dilba is an Aboriginal community-controlled organisation providing comprehensive primary health care and community services to greater Darwin region of the NT
  4. *The dilly bag is a traditional string bag, made by First Nations people from twisted bark fibres used for carrying personal and medicinal items and sacred artefacts.*Ancient and traditional bush medicine is typically prepared from Indigenous flora and fauna and earth (salt, clay, minerals), for spiritual and physical healing
  5. *Aṉangu Pitjantjatjara Yankunytjatjara (APY) Lands, is a large, sparsely-populated area for First Nations people, located in the remote north west of South Australia
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BMC Nephrology

ISSN: 1471-2369

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