Table 1 Demographics of survey respondents
From: Development and Validation of a Kidney-Transplant Specific Measure of Treatment Burden
Characteristics of Respondents | N = 167 |
|---|---|
Age (years), mean (range) | 60.9 (21.7–86.1) |
Male, N (%) | 93 (55.7) |
Race, N (%) | |
White | 138 (84.7) |
Black/African-American | 9 (5.5) |
Asian | 6 (3.7) |
American Indian/Alaskan Native | 4 (2.5) |
Mixed race (more than one race) | 4 (2.5) |
Other | 2 (1.2) |
Hispanic/Spanish/Latino ethnicity, N (%) | 7 (4.2) |
Marital status, N (%) | |
Never married | 15 (9.1) |
Married | 124 (75.2) |
Living with partner | 7 (4.2) |
Separated, divorced, widowed | 19 (11.5) |
Education level, N (%) | |
8th grade or less | 1 (0.6) |
Some high school | 1 (0.6) |
High school graduate/GED | 28 (16.8) |
Some college/technical degree | 57 (34.1) |
College graduate | 50 (29.9) |
Advanced degree | 30 (18.0) |
Work status, N (%) | |
Full-time employed | 58 (35.2) |
Part-time employed | 15 (9.1) |
Homemaker | 6 (3.6) |
Retired or unemployed | 68 (41.2) |
On disability or leave | 18 (10.9) |
Current yearly household income, N (%) | |
Less than $20,000 | 16 (10.4) |
$20,000 to $29,999 | 13 (8.4) |
$30,000 to $39,999 | 6 (3.9) |
$40,000 to $59,999 | 23 (14.9) |
$60,000 to $79,999 | 23 (14.9) |
$80,000 to $99,999 | 21 (13.6) |
$100,000 or more | 52 (33.8) |
Current living situation, N (%) | |
Living in a home | 150 (90.4) |
Living in an apartment | 11 (6.6) |
Assisted living/nursing home | 1 (0.6) |
Homeless | 1 (0.6) |
Other | 3 (1.8) |
Including yourself, current number people residing in your home, N (%) | |
2 | 92 (60.9) |
3 | 19 (12.6) |
4 or more | 16 (10.6) |
Time from kidney transplant (years), mean (range) | 4.0 (0.3–24.2) |
Donor type, N (%) | |
Deceased | 55 (32.9) |
Living related | 42 (25.1) |
Living unrelated | 70 (41.9) |
Prior kidney transplant, N (%) | 16 (9.6) |
History of pre-transplant dialysis, N (%) | 93 (55.7) |
Cause of end-stage renal disease, N (%) | |
Glomerulonephritis | 48 (28.7) |
Diabetes | 30 (18.0) |
Polycystic kidney disease | 36 (21.6) |
Other or unknown | 53 (31.7) |
Estimated glomerular filtration rate (GFR) (ml/min/1.73 m2), mean (range) | 49.0 (15–90) |
Comorbidities, N (%) | |
Diabetes | 51 (30.5) |
Hepatitis | 2 (1.2) |
Glaucoma | 4 (2.4) |
Depression | 38 (22.8) |
Asthma | 10 (6.0) |
Osteoarthritis | 9 (5.4) |
Hyperlipidemia | 117 (70.1) |
Hypertension | 151 (90.4) |
Coronary artery disease | 28 (16.8) |
Cancer | 39 (23.4) |
Congestive heart failure | 9 (5.4) |
Inflammatory arthritis | 7 (4.2) |
Number of comorbidities, N (%) | |
1 | 43 (25.7) |
2 | 49 (29.3) |
3 | 48 (28.7) |
4 | 27 (16.2%) |
Median number of conditions | 3.0 |
Number of medications, mean (range) | 11.5 (3.0–21.0) |
Immunosuppression, N (%) | |
Tacrolimus | 150 (89.8) |
Cyclosporine | 8 (4.8) |
Belatacept | 6 (3.6) |
Sirolimus | 3 (1.8) |
Prednisone maintenance, N (%) | 122 (73.1) |
History of acute rejection, N (%) | 40 (24.0) |
Estimated glomerular filtration rate (ml/min/1.73 m2), mean (range) | 49 (15–90) |
Smoking history, N (%) | |
Actively smoking | 3 (1.8) |
Prior smoker | 63 (38.0) |
Never smoker | 100 (60.2) |
Adherence to medications, N (%) | |
Always take all medications | 158 (94.6) |
Usually take all medications (85% of time) | 8 (4.8) |
Sometimes take all medications (< 80% of time) | 1 (0.6) |
How often do you have problems learning about your medical condition because of difficulty understanding written information? N (%) | |
All of the time | 2 (1.2%) |
Most of the time | 0 (0.0%) |
Some of the time | 13 (7.8%) |
Little of the time | 32 (19.2%) |
None of the time | 120 (71.9%) |
How confident are you filling out forms by yourself? N (%) | |
Always | 127 (76.0%) |
Often | 24 (14.4%) |
Sometimes | 8 (4.8%) |
Occasionally | 3 (1.8%) |
Never | 5 (3.0%) |
How often do you have trouble understanding medical information spoken to you by doctors or nurses? N (%) | |
All of the time | 4 (2.4%) |
Most of the time | 3 (1.8%) |
Some of the time | 17 (10.2%) |
Little of the time | 49 (29.3%) |
None of the time | 94 (56.3%) |