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Table 2 Scores from original items within the kidney-transplant specific supplement

From: Development and Validation of a Kidney-Transplant Specific Measure of Treatment Burden

Item1, 2

N

Mean (SD)

Score range

Not

Applicable or Missing

Q1. I have been concerned my KT is losing function

160

2.98 (0.96)

1.00–4.00

7

Q2. I have been confident that I am taking good care of my KT

163

1.67 (0.72)

1.00–4.00

4

Q3. I have been concerned that I will have to started dialysis in the future

154

3.04 (0.96)

1.00–4.00

13

Q4. I have been concerned about my body rejecting my KT

160

2.88 (0.93)

1.00–4.00

7

Q5. I have been concerned that my original kidney disease will return and affect the function of my KT

146

2.90 (0.97)

1.00–4.00

21

Q6. I have been confident that I will never do anything that will hurt my KT

163

1.79 (0.79)

1.00–4.00

4

Q7. I feel responsible for my kidney transplant doing well

163

1.48 (0.57)

1.00–3.00

4

Q8. I feel that I know enough about the person who donated my kidney

156

1.79 (1.03)

1.00–4.00

11

Q9. I have felt like I would like to communicate more with my kidney donor or the family of the person who donated my kidney

126

2.66 (1.01)

1.00–4.00

41

Q10. My dialysis graft or fistula has been bothering me

76

2.92 (1.04)

1.00–4.00

91

Q11. I have been concerned about developing an infection of any type

161

2.61 (0.98)

1.00–4.00

6

Q12. I have been concerned about developing a cancer of any type

162

2.69 (0.89)

1.00–4.00

5

Q13. I have had difficulty taking my anti-rejection medications as directed

164

3.55 (0.72)

1.00–4.00

3

Q14. I have been bothered by side effects of my anti-rejection medications

163

2.87 (1.03)

1.00–4.00

4

  1. 1All items use the following response scale: 1-strongly agree; 2-agree; 3-disagree; 4-strongly disagree; 5-not applicable; 2 The PETS measure, including all adaptations, derivations, and translations are protected by copyright, © 2020 Mayo Foundation for Medical Education and Research. All Rights Reserved. Queries regarding any aspect of this work should be addressed to the corresponding author