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Table 3 Responses to PETS, the kidney-transplant specific supplement scales, and other surveys

From: Development and Validation of a Kidney-Transplant Specific Measure of Treatment Burden

 

N

Mean (SD1)

Score range2

PETS3 scales

 Medical information

162

17.4 (16.5)

0.0–71.4

 Medications

159

13.0 (16.5)

0.0–92.9

 Medical appointments

158

15.1 (15.8)

0.0–58.3

 Monitoring health

157

22.1 (22.1)

0.0–100.0

 Diet

166

32.6 (20.0)

0.0–100.0

 Exercise or physical therapy

166

39.8 (24.3)

0.0–100.0

 Relationships with others

164

12.1 (16.6)

0.0–87.5

 Medical and health care expenses

162

32.3 (24.9)

0.0–100.0

 Difficulty with health care services

156

26.8 (19.5)

0.0–90.5

 Role/social activity limitations

162

16.2 (20.4)

0.0–100.0

 Physical/mental fatigue

161

21.8 (21.3)

0.0–90.0

 Bother due to reliance on medicine

159

13.4 (22.5)

0.0–100.0

 Bother due to medicine side effects

159

23.9 (28.9)

0.0–100.0

KT-specific supplement scales

 Transplant function

158

35.1 (26.1)

0.0–100.0

 Transplant self-management

164

21.7 (18.7)

0.0–77.8

 Transplant adverse effects

162

42.6 (24.8)

0.0–100.0

PROMIS Global-104

 Global Physical Health

156

49.9 (8.8)

26.7–67.7

 Global Mental Health

164

50.0 (9.0)

21.2–67.6

KDQOL-SF5

 Burden of kidney disease

165

77.5 (23.6)

0.0–100.0

 Symptoms/problems of kidney disease

166

85.6 (13.6)

25.0–100.0

 Effects of kidney disease

166

85.9 (16.5)

6.3–100.0

TSQM6

 Side effects

158

80.1 (26.8)

0.0–100.0

 Convenience

81

81.2 (18.0)

22.2–100.0

PMCSM7

 Self-Management

166

33.7 (6.0)

14.0–40.0

  1. 1Standard deviation; 2Scores for surveys range from 0 (lowest) to 100 (highest) with PMCSM ranging from 8 (lowest) to 40 (highest); 3Patient Experience with Treatment and Self-Management; 4Patient-Reported Outcomes Measurement Information System (T-Score); 5Kidney Disease Quality of Life Short-Form; 6Treatment Satisfaction Questionnaire for Medication; 7Perceived Medical Condition Self-Management Scale