From: Development and Validation of a Kidney-Transplant Specific Measure of Treatment Burden
N | Mean (SD1) | Score range2 | |
---|---|---|---|
PETS3 scales | |||
Medical information | 162 | 17.4 (16.5) | 0.0–71.4 |
Medications | 159 | 13.0 (16.5) | 0.0–92.9 |
Medical appointments | 158 | 15.1 (15.8) | 0.0–58.3 |
Monitoring health | 157 | 22.1 (22.1) | 0.0–100.0 |
Diet | 166 | 32.6 (20.0) | 0.0–100.0 |
Exercise or physical therapy | 166 | 39.8 (24.3) | 0.0–100.0 |
Relationships with others | 164 | 12.1 (16.6) | 0.0–87.5 |
Medical and health care expenses | 162 | 32.3 (24.9) | 0.0–100.0 |
Difficulty with health care services | 156 | 26.8 (19.5) | 0.0–90.5 |
Role/social activity limitations | 162 | 16.2 (20.4) | 0.0–100.0 |
Physical/mental fatigue | 161 | 21.8 (21.3) | 0.0–90.0 |
Bother due to reliance on medicine | 159 | 13.4 (22.5) | 0.0–100.0 |
Bother due to medicine side effects | 159 | 23.9 (28.9) | 0.0–100.0 |
KT-specific supplement scales | |||
Transplant function | 158 | 35.1 (26.1) | 0.0–100.0 |
Transplant self-management | 164 | 21.7 (18.7) | 0.0–77.8 |
Transplant adverse effects | 162 | 42.6 (24.8) | 0.0–100.0 |
PROMIS Global-104 | |||
Global Physical Health | 156 | 49.9 (8.8) | 26.7–67.7 |
Global Mental Health | 164 | 50.0 (9.0) | 21.2–67.6 |
KDQOL-SF5 | |||
Burden of kidney disease | 165 | 77.5 (23.6) | 0.0–100.0 |
Symptoms/problems of kidney disease | 166 | 85.6 (13.6) | 25.0–100.0 |
Effects of kidney disease | 166 | 85.9 (16.5) | 6.3–100.0 |
TSQM6 | |||
Side effects | 158 | 80.1 (26.8) | 0.0–100.0 |
Convenience | 81 | 81.2 (18.0) | 22.2–100.0 |
PMCSM7 | |||
Self-Management | 166 | 33.7 (6.0) | 14.0–40.0 |