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Table 1 Data collected at study baseline and follow up

From: The providing resources to enhance African American patients’ readiness to make decisions about kidney disease (PREPARED) study: protocol of a randomized controlled trial

 

PATIENT

Measure

Baseline

1

3

6

  

Month

Month

Month

Current Treatment Information

    

 Date and Place of Initiation of Dialysis

  X

   

 Presence of AV* Fistula or AV Graft

  X

   

 Presence of Peritoneal Catheter

  X

  X

  X

  X

Exposure to Information about Kidney Disease Treatment

    

 In Center Hemodialysis Information

  X

  X

  X

  X

 Home Hemodialysis Information

  X

  X

  X

  X

 Peritoneal Dialysis Information

  X

  X

  X

  X

 Kidney Transplant Information

  X

  X

  X

  X

 Live Donor Kidney Transplant Information

  X

  X

  X

  X

Discussions with Health Care Providers about Kidney Disease Treatment

    

 Occurrence of Physician Discussions-Nephrologists

  X

   

 Satisfaction with Patient-Physician Discussions

  X

   

 Physician Recommendations Regarding LRT*

  X

   

Belief & Knowledge about Treatment for Kidney Failure, Interest in LRT

    

 Beliefs About Treatment for Kidney Failure

  X

  X

  X

  X

 Knowledge of LRT

  X

  X

  X

  X

 Interest in LRT

  X

  X

  X

  X

 Consideration of LRT (stage placement)

  X

  X

  X

  X

Elements of Shared Decision Making

    

 Stage in Decision Making [43]

  X

  X

  X

  X

 Decision Self-Efficacy [43]

  X

  X

  X

  X

 Decisional Conflict Scale [44]

  X

  X

  X

  X

 Interest in Switching Renal Replacement Therapy

    

Pursuit of LRT, Barriers to Completing Behavior Stages

    

 Quality of Family Discussion

  X

  X

  X

  X

 Information on Donor

  X

  X

  X

  X

 Barriers to Patient-Family Discussion

  X

  X

  X

  X

 Barriers to Patient-Physician Discussion

  X

  X

  X

  X

 Barriers to Starting Evaluation

  X

  X

  X

  X

 Barriers to Completing Evaluation

  X

  X

  X

  X

Mediators and Correlates of Pursuit of LRT

    

 Trust in Medical Care [53, 54]

  X

   

 In-Center Dialysis Care - Nephrologist Communication, Receipt of Information

  X

  X

  X

  X

 Family Functioning [46]

  X

   

 Depressed Mood PRIME-MD/PHQ*[48]

  X

 

  X

  X

 Social Function - Emotional Support, Instrumental Support, Informational Support, Social Isolation [47]

  X

   

 Personal Financial Well-being Scale [49]

  X

   

 Charlson Comorbidity Index [55]

  X

   

 Sociodemographic Information

  X

   

Assessment of Book and Video

    

 Assessment of Book and Video

 

  X

  X

  X

Health Literacy and Numeracy

    

 Rapid Estimate of Adult Literacy in Medicine (REALM) [50]

  X

   

 Subjective Numeracy and Risk Numeracy [51, 52]

  X

   
  1. *Abbreviations are as follows: living related kidney transplantation (LRT); arteriovenous (AV); primary care evaluation of mental disorders/patient health questionnaire (PRIME-MD/PHQ).