Table 3 Patients’ and family members’ factors to address in educational resources about RRT selection decisions
Ranking round* | All patients n(%)** | All family members n(%)** | |||
|---|---|---|---|---|---|
AA | Non-AA | AA | Non- AA | ||
N=37 | N=31 | N=32 | N=30 | ||
Morbidity/Mortality | |||||
Living Longer | 1 | 30 (81) | 22 (71) | 22 (69) | 23 (77) |
2 | 22 (59) | 21 (68) | 17 (53) | 23 (77) | |
Going to the hospital | 1 | 6 (16) | 3 (10) | 2 (6) | 2 (7) |
2 | 2 (5) | 2 (6) | 1 (3) | 0 (0) | |
Infections | 1 | 2 (5) | 5 (16) | 10 (31) | 6 (20) |
2 | 1 (3) | 3 (10) | 7 (22) | 3 (10) | |
Complications with surgery | 1 | 1 (3) | 2 (6) | 4 (13) | 2 (7) |
2 | 0 (0) | 2 (6) | 3 (9) | 1 (3) | |
Cancer | 1 | 2 (5) | 1 (3) | 0 (0) | 0 (0) |
2 | 0 (0) | 2 (6) | 0 (0) | 0 (0) | |
Making frequent trips to the doctor | 1 | 1 (3) | 0 (0) | 1 (3) | 2 (7) |
2 | 5 (14) | 1 (3) | 2 (6) | 1 (3) | |
Autonomy | |||||
Having children or getting pregnant | 1 | 0 (0) | 0 (0) | 2 (6) | 2 (7) |
2 | 0 (0) | 0 (0) | 3 (9) | 2 (7) | |
Control over treatment schedule | 1 | 6 (16) | 5 (16) | 6 (19) | 4 (13) |
2 | 2 (5) | 5 (16) | 2 (6) | 3 (10) | |
Doing the things I want to do when I want to do them | 1 | 10 (27) | 11 (35) | 10 (31) | 7 (23) |
2 | 7 (19) | 13 (42) | 6 (19) | 7 (23) | |
Going places by oneself | 1 | 5 (14) | 3 (10) | 2 (6) | 1 (3) |
2 | 1 (3) | 2 (6) | 0 (0) | 1 (3) | |
What I can eat or drink | 1 | 4 (11) | 4 (13) | 4 (13) | 5 (17) |
2 | 4 (11) | 4 (13) | 5 (16) | 6 (20) | |
Freedom and control over my life | 1 | 14 (38) | 8 (26) | 10 (31) | 14 (47) |
2 | 6 (16) | 7 (23) | 8 (25) | 14 (47) | |
Washing, dressing, eating, and going to the toilet by myself | 1 | 1 (3) | 1 (3) | 0 (0) | 2 (7) |
2 | 0 (0) | 1 (3) | 1 (3) | 2 (7) | |
Doing usual activities | 1 | 3 (8) | 3 (10) | 2 (6) | 5 (17) |
2 | 4 (11) | 3 (10) | 5 (16) | 6 (20) | |
Delivery | |||||
Blood tests, x-rays, and doctors visits | 1 | 3 (8) | 3 (10) | 2 (6) | 6 (20) |
2 | 0 (0) | 3 (10) | 0 (0) | 6 (20) | |
Pills that must be taken | 1 | 4 (11) | 4 (11) | 1 (3) | 7 (23) |
2 | 3 (8) | 4 (13) | 1 (3) | 8 (27) | |
Providing my own treatment | 1 | 6 (16) | 3 (10) | 2 (6) | 0 (0) |
2 | 3 (8) | 1 (3) | 1 (3) | 1 (3) | |
Surgery | 1 | 2 (5) | 1 (3) | 0 (0) | 1 (3) |
2 | 0 (0) | 1 (3) | 0 (0) | 0 (0) | |
Ordering and storing supplies at home | 1 | 2 (5) | 0 (0) | 1 (3) | 2 (7) |
2 | 3 (8) | 0 (0) | 1 (3) | 1 (3) | |
Surgery for fistulas or catheters | 1 | 1 (3) | 1 (3) | 1 (3) | 1 (3) |
2 | 1 (3) | 3 (10) | 1 (3) | 1 (3) | |
Fistula or catheter problems | 1 | 3 (8) | 1 (3) | 0 (0) | 0 (0) |
2 | 3 (8) | 1 (3) | 1 (3) | 1 (3) | |
The treatment going as expected | 1 | 1 (3) | 2 (6) | 2 (6) | 3 (10) |
2 | 4 (11) | 2 (6) | 0 (0) | 2 (7) | |
Getting on the waiting list | 1 | 0 (0) | 2 (6) | 1 (3) | 1 (3) |
2 | 0 (0) | 2 (6) | 0 (0) | 0 (0) | |
Finding a living donor | 1 | 3 (8) | 3 (10) | 4 (13) | 7 (23) |
2 | 0 (0) | 4 (13) | 4 (13) | 8 (27) | |
Symptoms | |||||
Itching, cramping, or aching | 1 | 2 (5) | 1 (3) | 1 (3) | 0 (0) |
2 | 2 (5) | 1 (3) | 0 (0) | 0 (0) | |
Thinking clearly | 1 | 5 (14) | 4 (13) | 5 (16) | 0 (0) |
2 | 2 (5) | 7 (23) | 2 (6) | 0 (0) | |
Feeling tired | 1 | 1 (3) | 3 (10) | 3 (9) | 3 (10) |
2 | 5 (14) | 2 (6) | 3 (9) | 3 (10) | |
Gaining weight | 1 | 1 (3) | 2 (6) | 0 (0) | 0 (0) |
2 | 1 (3) | 5 (16) | 1 (3) | 0 (0) | |
Losing weight | 1 | 0 (0) | 1 (3) | 0 (0) | 0 (0) |
2 | 1 (3) | 0 (0) | 2 (6) | 0 (0) | |
Pain | 1 | 2 (5) | 0 (0) | 4 (13) | 2 (7) |
2 | 1 (3) | 0 (0) | 4 (13) | 6 (20) | |
Relationships | |||||
Having and enjoying sexual relations | 1 | 1 (3) | 0 (0) | 1 (3) | 1 (3) |
2 | 0 (0) | 0 (0) | 5 (16) | 2 (7) | |
How much family and friends need to help | 1 | 8 (22) | 1 (3) | 4 (13) | 0 (0) |
2 | 1 (3) | 1 (3) | 4 (13) | 0 (0) | |
Strains in ties with my family and friends | 1 | 1 (3) | 1 (3) | 0 (0) | 0 (0) |
2 | 1 (3) | 0 (0) | 1 (3) | 0 (0) | |
Making new friends | 1 | 0 (0) | 0 (0) | 0 (0) | 0 (0) |
2 | 2 (5) | 0 (0) | 1 (3) | 0 (0) | |
Psychological | |||||
Feeling sad, anxious, stressed out | 1 | 1 (3) | 2 (6) | 3 (9) | 1 (3) |
2 | 2 (5) | 1 (3) | 3 (9) | 2 (7) | |
Finance | |||||
Money spent from my own pocket | 1 | 2 (5) | 1 (3) | 3 (9) | 0 (0) |
2 | 1 (3) | 1 (3) | 2 (6) | 1 (3) | |