Table 3 Schedule of patient and family participant assessments in the TALK study

Exposure to information about Kidney Disease Treatment

Dialysis Information

X

X

X

X

X

X

Kidney Transplant Information

X

X

X

X

X

X

Live Donor Kidney Transplant Information

X

X

X

X

X

X

Discussions with Health Care Providers about Kidney Disease Treatment

Prior Discussions with Social Worker(s)

X

X

Occurrence of Physician Discussions-Primary Care, Nephrologists

X

Perception of Centeredness in Patient-Physician Discussions [34]

X

X

X

Satisfaction with Patient-Physician Discussions

X

Physician Recommendations regarding LKT

X

Belief & Knowledge about Treatment for Kidney Failure, Interest in LKT

Beliefs About Treatment for Kidney Failure

X

X

X

X

Knowledge of LKT

X

X

X

X

X

X

Interest in LKT

X

X

X

X

Consideration of LKT (stage placement)

X

X

X

X

Pursuit of LKT, Barriers to Completing Behavior Stages

Quality of Family Discussion

X

X

X

X

X

X

Information on Donor

X

X

X

X

Barriers to Patient-Family Discussion

X

X

X

X

Barriers to Patient-Physician Discussion

X

X

X

X

Barriers to Starting Evaluation

X

X

X

X

Barriers to Completing Evaluation

X

X

X

X

Mediators and Correlates of Pursuit of LKT

Trust in Medical Care [35–37]

X

Patient Activation Measure-Short Form [38]

X

X

X

X

Decision Self-Efficacy [39]

X

X

X

X

Family Structure Inventory

X

Family Assessment Device (General, Communication, and Problem Solving Scales)[40, 41]

X

X

X

X

X

Depressed Mood-Prime MD/PHQ [42]

X

X

X

Medical Outcomes Study (MOS) Social Support Scale [43]

X

X

X

Spirituality & Religion [44]

X

Trait Hope Scale [45]

X

X

X

X

Personal Financial Well-being Scale [46]

X

Sociodemographic Information

X

X

Assessment of Booklet and Video

Assessment of Booklet and Video

X

X

X

X

X

Health Literacy

Rapid Estimate of Adult Literacy in Medicine (REALM) [47]

X