Table 1 Data elements sought

Basic registry information

Region, acronym, full name, website, country, year established, year of latest annual report, address, telephone/fax numbers, email, Chairperson, Director, history, current status (active or inactive), patient group, inclusion of pediatric data, geographical reach, use of quality control measures, inclusion of incident and/or prevalent patients, use of special inclusion sampling, inclusion of transplant and/or dialysis patients

Aggregate data

Availability, how to access, who can access, cost to access

Individual patient data

Availability, how to access, who can access, cost to access

Data source

Sector (public or private), RRT service provider, method of patient recruitment, means by which patients exit registry

Patient characteristics

Age, gender, race, ethnicity, body mass index, duration of ESRD, level of education, employment status, insurance

Comorbidities

Whether reported, specific comorbidities assessed

Treatment characteristics

Modality and submodality, dialysis-product information, dose of dialysis, vascular access method, if RRT initiation was unplanned or planned, if start date reported, length of time on dialysis, treatment costs, funding source

Outcomes

Laboratory results, quality of life (scale/instrument used), peritonitis rate, infection rate, other adverse events reported, survival data/all-cause mortality rates, renal failure-related mortality rates, any additional outcomes collected