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Table 1 Patients’ sources of information on AML and the risk of renal bleeding

From: Renal manifestations of tuberous sclerosis complex: patients’ and parents’ knowledge and routines for renal follow-up – a questionnaire study

  

Medical consultation

n (%)

Patient association

n (%)

Occurrence of renal symptoms

n (%)

Internet

n (%)

Medical journals

n (%)

AML

Norway (N = 89)

71 (80)

37 (42)

14 (16)

18 (20)

12 (14)

France (N = 242)

180 (74)

87 (36)

18 (7)

6 (3)

0

Total (N = 331)

251 (76)

124 (37)

32 (10)

24 (7)

12 (4)

Risk of renal bleeding

Norway (N = 37)

26 (70)

17 (46)

1 (3)

3 (8)

6 (16)

France (N = 162)

83 (51)

80 (49)

8 (5)

7 (4)

0

Total (N = 199)

109 (55)

97 (49)

9 (5)

10 (5)

6 (3)

  1. AML: angiomyolipoma