Table 2 Awareness of AML and risk of bleeding among participants
Number (%) | P | ||
|---|---|---|---|
Participants unaware of AML association with TSC | |||
Country | Norway (n = 99) | 9 (9) | 0.21 |
France (n = 257) | 14 (5) | ||
Person who completed the questionnaire | Parent (n = 255) | 8 (3) | < 0.001 |
Patient (n = 86) | 14 (16) | ||
Frequency of imaging | No or less than every 3 years (n = 83) | 12 (16) | < 0.001 |
At least every 3 years (n = 192) | 6 (3) | ||
Patient’s age | < 15 years (n = 94) | 4 (4) | 0,355 |
≥ 15 years (n = 259) | 18 (7) | ||
Presence of AML | Yes (n = 189) | 4 (2) | < 0.001 |
No (n = 110) | 3 (3) | ||
Do not know (n = 50) | 12 (24) | ||
Participants unaware of the risk of bleeding of AML | |||
Country | Norway (n = 98) | 58 (59) | < 0.001 |
France (n = 252) | 89 (35) | ||
Person who completed the questionnaire | Parent (n = 250) | 94 (38) | 0.022 |
Patient (n = 85) | 44 (52) | ||
Frequency of imaging | No or less than every 3 years (n = 81) | 46 (57) | 0.001 |
At least every 3 years (n = 190) | 65 (34) | ||
Patient’s age | < 15 years (n = 94) | 52 (55) | 0.003 |
≥ 15 years (n = 253) | 95 (38) | ||
Presence of AML | Yes (n = 185) | 45 (24) | |
No (n = 110) | 59 (54) | < 0.001 | |
Do not know (n = 49) | 37 (76) | ||