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Table 2 Frequency of mentions and prevalence of signs/symptoms and life impacts in the selected publications

From: Development of a preliminary conceptual model of the patient experience of chronic kidney disease: a targeted literature review and analysis

 

Overall

Subpopulationsa

(N = 100)

General (N = 48)

Diabetes (N = 11)

Anaemia (N = 7)

CKD 1–3 (N = 9)

CKD 4–5 (N = 14)

Dialysis (N = 26)

 

Freq.

Prev.

Freq.

Prev.

Freq.

Prev.

Freq.

Prev.

Freq.

Prev.

Freq.

Prev.

Freq.

Prev.

Signs/symptomsb

 Pain/discomfort

57

73

58

75

36

NR

71

68

44

60

57

100

73

75

 Tiredness/low energy/lethargy/fatigue

42

100

31

100

27

NR

86

50

22

24

36

76

62

71

 Disturbed sleep/sleep-related problems

28

94

33

94

–

–

–

–

11

55

29

66

38

80

 Itching/skin problems

25

89

17

89

18

NR

–

–

22

NR

29

84

42

83

 Muscular pain/cramps

18

89

17

89

18

44

–

–

11

55

7

83

31

69

 Appetite loss/anorexia

18

67

15

67

9

NR

–

–

–

–

21

32

35

53

 Nausea

18

59

8

38

18

NR

–

–

–

–

21

59

38

42

 Dyspnoea/shortness of breath

17

80

12

67

9

36

14

NR

–

–

21

80

31

66

 Feeling unwell

7

55

4

NR

27

52

–

–

11

NR

7

NR

8

36

 Dizziness

7

50

–

–

–

–

–

–

–

–

–

–

27

50

Life impactsb

 Anxiety/depression

49

83

56

39

27

83

14

NR

55

33

43

65

54

57

 Mental impact

26

26

27

21

55

26

43

NR

–

–

7

NR

23

NR

 Mood change/irritability

12

50

10

50

36

NR

–

–

11

NR

14

NR

8

24

 Physical functioning

43

83

52

83

55

NR

86

NR

22

61

14

NR

35

14

 Emotional interference

37

82

35

82

45

NR

43

NR

–

–

14

NR

54

45

 Social relationship interference

34

60

31

89

64

NR

57

83

11

26

7

NR

38

28

 Cognitive impairment (memory, concentration, confusion)

27

61

31

71

9

36

–

–

33

14

14

NR

35

52

 General health perception

26

36

27

19

27

NR

57

NR

11

NR

7

NR

31

36

ADL/daily/regular activities

24

80

25

46

–

–

28

83

33

49

14

80

38

60

 Diet/food changes/related

23

83

23

74

36

43

–

–

–

–

7

40

27

48

 Vitality

23

60

19

24

36

NR

86

60

22

NR

14

NR

23

NR

 Mobility problems

16

100

21

61

9

NR

14

NR

33

45

21

100

19

70

 Self-care issues

10

88

8

NR

9

NR

28

NR

22

18

21

68

12

88

 Activity impairment

9

89

6

89

18

NR

43

22

11

52

7

48

12

52

  1. Freq. (frequency): values indicate the proportion (%) of publications in which each sign/symptom or life impact was mentioned (−, not mentioned)
  2. Prev. (prevalence): values indicate the highest observed prevalence (%) of the signs/symptoms or life impacts in the publications (−, not mentioned). Prevalence values of 50% or above are highlighted in bold
  3. aPublications could report data for more than one subpopulation
  4. bSigns/symptoms and life impacts mentioned in at least 25% of the publications for any subpopulation were included
  5. ADL activities of daily living, CKD chronic kidney disease, freq. frequency, prev. prevalence, NR not reported
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BMC Nephrology

ISSN: 1471-2369

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