Table 2 Summary of responses rate to online survey questions (n = 536)
Questions | Response rate |
|---|---|
1. Person or carer of someone with PKD | 98.7 % (529/536) |
2. Gender | 100 % (536/536) |
3. Age range | 100 % (536/536) |
4. Length of time since diagnosis | 100 % (536/536) |
5. Stage of kidney disease | 97.9 % (527/536) |
6. What has been the biggest challenge for you or the person living with (PKD)? (free text question) | 93.7 % (502/536) |
7. What type of information have you tried to find online? | 96.1 % (515/536) |
8. Have you used social media to find information about PKD? | 93.7 % (502/536) |
9. Do you follow a special diet for your PKD? (free text question) | 94.6 % (507/536) |
10. Have you seen a dietitian previously to get information about the diet for PKD? | 97.0 % (520/536) |
11. If you had a chance to ask a dietitian a question right now, what would you most like to know? (free text question) | 97.9 % (525/536) |
12. Would you find a cookbook for people with PKD useful? | 100 % (536/536) |
13. In what format would you like a cookbook? | 96.6 % (518) |
14. What aspects would be of interest in a cookbook ? | 97.2 % (521/536) |
15. Would you be interested in submitting a recipe for a cookbook ? | 95.3 % (511/536) |
16. Would you like to assist with compilation of a recipe book ? | 98.1 % (526/536) |
17. Do you have any other comment or suggestions on how to deliver nutrition information to people affected by PKD? (free text question) | 48.9 % (262/536) |