Table 3 Demographic characteristics of survey participants (n = 536)
Disease status | |
|---|---|
The person with PKD | 495 (92.4 %) |
Parent of someone who has PKD | 15 (2.8 %) |
Carer of someone who has PKD | 15 (2.8 %) |
Sibling of someone with PKD | 1 (0.2 %) |
Friend of someone with PKD | 3 (0.6 %) |
Other | 16 (3.0 %) |
Gender | |
 Female | 380 (70.9 %) |
 Male | 156 (29.1 %) |
 Prefer not to say | 0 (0.0 %) |
Age | |
 Less than 18 years of age | 12 (2.2 %) |
 18–34 years of age | 73 (13.6 %) |
 35–54 years of age | 238 (44.4 %) |
 55–70 years of age | 177 (33.0 %) |
 70 + years of age | 36 (6.7 %) |
Length of time since diagnosis of person with PKD (years) | Â |
 Less than 1 year ago | 17 (3.2 %) |
 1–5 years ago | 79 (14.7 %) |
 5–10 years ago | 64 (11.9 %) |
 More than 10 years ago | 376 (70.2 %) |
Stage of PKD | |
 Unsure | 53 (9.9 %) |
 Stage 1 or 2 | 150 (28.0 %) |
 Stage 3 | 121 (22.6 %) |
 Stage 4 (predialysis) | 85 (15.9 %) |
 Stage 5 (dialysis or have had a transplant) | 116 (21.7 %) |
 Other comments | 31 (5.8 %) |
 No response | 1 (0.2 %) |
Location of respondent | |
 USA | 308 (57.5 %) |
 Australia | 134 (25 %) |
 United Kingdom | 53 (9.9 %) |
 Europe | 11 (2.1 %) |
 New Zealand | 8 (1.5 %) |
 Canada | 8 (1.5 %) |
 South East Asia | 8 (1.5 %) |
 Middle East | 3 (0.6 %) |
 South or Central America | 2 (0.4 %) |
 Africa | 1 (0.2 %) |