Fig. 2

Thematic schema: an overview of the identified themes with a hypothesized relation between themes. Patients with CKD face uncertainties and problems regarding their disease progress. This is aggravated by the lack of knowledge, incomprehensible and unavailable information and impossibility to adequately estimate risks, essentially leaving patients in a situation where they do not know what to expect, how high the risks are, and when to expect certain outcomes of interest. Major themes (blue boxes, bold) are linked to subthemes (white boxes, underlined). Abbreviations: CKD; chronic kidney disease, KRT; kidney replacement therapy