Table 2 Symptom scales chosen for patients with chronic kidney disease treated with hemodialysis in the ePROMs study

Fatigue

Prevalence

Binary question: Yes/No

Intensity

Visual analog scale from 0 (not tired) to 10 (very tired)

Recovery time

Likert scale (less than 2 h, 2 to 6 h, 7 to 12 h, more than 12 h)

Stress

Intensity

Visual analog scale from 0 (not stressed) to 10 (very stressed)

Severity

Perceived Stress Scale adapted from Cohen and Williamson

A (<21): knows how to manage stress and adapt to find solutions

B (21 to 26): knows to manage stress most of the time but it is not possible to manage stress in some situations. It is possible to learn stress management techniques

C (≥27): does not know how to manage stress and perception of continuous threat which can negatively impact life and disease course.

Sleep disturbance

Sleep quality the night before dialysis compared to other nights

Likert scale (My sleep is better, my sleep is more or less good, my sleep is unchanged, my sleep is altered)

Overall health status

Current status

Visual analog scale from 0 (very poor health) to 10 (very good health)

Comparison to 1 year before

Likert scale (poorer status, unchanged, more or less improved, improved)