Cognitive behavioural therapy self-help intervention preferences among informal caregivers of adults with chronic kidney disease: an online cross-sectional survey

Coumoundouros, Chelsea; Farrand, Paul; Hamilton, Alexander; von Essen, Louise; Sanderman, Robbert; Woodford, Joanne

doi:10.1186/s12882-022-03052-7

Table 2 Care recipient characteristics and description of the caregiving situation (n = 65)

From: Cognitive behavioural therapy self-help intervention preferences among informal caregivers of adults with chronic kidney disease: an online cross-sectional survey

Characteristic	Number	Percentage (%)
Care recipient
Age in years, mean (SD) [range]^a	53 (16) [18–77]	NA
Gender
Female	15	23
Male	50	77
Approximate time since diagnosis in years, mean (SD) [range]^b	14 (11) [1–42]	NA
Type of kidney condition(s)^c
Chronic kidney disease	64	98
Transplant	11	17
Missing	1	2
Type of treatment(s)^d
Kidney replacement therapy	45	69
Regular monitoring	42	65
Medication for their kidney condition	41	63
Medication for the disease causing the kidney condition	23	35
Cancer treatment	1	2
No treatment	1	2
Other	6	9.2
Terminally ill
Yes	1	2
No	64	98
Number of other chronic conditions
0 to 2	41	63
3 to 5	24	37
Receipt of informal care from anyone else
Yes	9	14
No	55	85
Missing	1	2
Receipt of formal home care
Yes	10	15
No	53	82
Missing	2	3
Caregiving role
Time in caregiving role in years, mean (SD) [range]^a	8 (8) [0.8 – 41]	NA
Caregiver’s relationship with the care recipient
Spouse/partner	48	74
Parent	9	14
Child	4	6
Other family member	2	5
Friend	1	2
Other	1	2
Living with care recipient
Yes	52	80
No^e	13	20
Frequency of face-to-face contact with care recipient in a typical week
Daily	55	85
A few days a week	7	11
Not seen every week	3	5
Informal care activities^d
Emotional support	54	83
Attending medical appointments with the care recipient	51	78
Running errands	48	74
Cleaning/gardening	44	68
Cooking	42	65
Managing symptoms	41	63
Driving	35	54
Communicating with medical care team	34	52
Organising medical care (e.g. making appointments)	27	42
Assist with home treatments	25	38
Managing finances	24	37
Assisting with medications	22	34
Getting around care recipient’s home	22	34
Bathing/showering	17	26
Wound care	16	25
Caring for access port or dialysis catheter	14	22
Getting dressed	11	17
Other	7	11
Receipt of Carer’s Allowance
Yes	2	3
No	62	95
Missing	1	2
Presence of dependent children
Yes	26	40
No	35	54
Missing	4	6
Provision of informal care to others
Yes^f	25	38
No	38	58
Missing	2	3

Abbreviations: SD Standard deviation
^aData available for 64 participants
^bData available for 63 participants
^cType of kidney condition was self-described by the caregiver. Care recipients with transplants were assumed to have chronic kidney disease as well, if not specified. Chronic kidney disease was further described by some participants with the following information: polycystic kidney disease (n = 9), IgA nephropathy (n = 7), Allports (n = 2), kidney cancer (n = 1), and various other conditions/causes (n = 14). Kidney failure and/or CKD stage 5 was mentioned by 25 participants
^dParticipants could select multiple responses
^eOf 13 participants who did not live with the care recipient, 12 responded that they lived an average of 43 miles (SD = 85) away, spending an average of 1.1 h (SD = 1.8) travelling to the care recipient’s residence
^fThose with other informal care responsibilities also cared for their parent(s) (n = 9), child(ren) (n = 7), grandchild(ren) (n = 2), other family member(s) (n = 9), friend (n = 1), neighbour (n = 1), and/or spouse/partner (n = 1)

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ISSN: 1471-2369

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