Table 2 Distribution in percentages (%) in levels and rankings of preference-based patient participation, at the baseline and different time points after the intervention
Item (in order of the 4Ps tool) | Insufficient | Fair | Sufficient | n | |||
|---|---|---|---|---|---|---|---|
0 | 1 | 2 | 3 | 4 | 5 | ||
No. 1—Being listened to | |||||||
Baseline | 0.6 | 3.1 | 8.0 | 16.3 | 23.7 | 48.3 | 350 |
6 months | 0.3 | 4.5 | 5.4 | 13.7 | 25.2 | 50.8 | 313 |
12 months | 0.0 | 4.3 | 5.4 | 15.1 | 25.8 | 49.5 | 279 |
18 months | 0.8 | 1.9 | 8.0 | 11.8 | 30.9 | 46.6 | 262 |
No. 2—Experiences recognised | |||||||
Baseline | 0.9 | 3.4 | 17.2 | 10.3 | 22.4 | 45.7 | 348 |
6 months | 0.3 | 3.2 | 16.9 | 8.1 | 25.6 | 45.8 | 308 |
12 months | 0.4 | 3.2 | 16.4 | 7.8 | 23.5 | 48.8 | 281 |
18 months | 0.8 | 0.8 | 10.8 | 10.0 | 24.3 | 53.3 | 259 |
No. 3—Reciprocal communication | |||||||
Baseline | 0.3 | 6.4 | 8.1 | 15.6 | 23.7 | 46.0 | 346 |
6 months | 0.3 | 5.2 | 6.8 | 11.6 | 28.1 | 48.1 | 310 |
12 months | 0.4 | 5.7 | 8.2 | 13.2 | 22.1 | 50.4 | 280 |
18 months | 0.8 | 3.8 | 10.4 | 10.4 | 26.2 | 48.5 | 260 |
No. 4—Sharing one’s symptoms | |||||||
Baseline | 0.3 | 4.6 | 6.3 | 16.4 | 22.1 | 50.3 | 348 |
6 months | 0.6 | 2.3 | 6.8 | 10.6 | 30.2 | 49.5 | 311 |
12 months | 0.4 | 4.0 | 8.6 | 14.0 | 22.7 | 50.4 | 278 |
18 months | 0.4 | 3.9 | 6.9 | 9.3 | 31.7 | 47.9 | 259 |
No. 5—Explanation for symptoms | |||||||
Baseline | 0.0 | 8.3 | 14.0 | 11.7 | 22.0 | 44.0 | 350 |
6 months | 1.0 | 4.2 | 11.3 | 10.7 | 21.4 | 51.5 | 309 |
12 months | 0.7 | 7.9 | 14.4 | 9.0 | 17.7 | 50.2 | 277 |
18 months | 1.9 | 5.4 | 10.7 | 7.7 | 26.8 | 47.5 | 261 |
No. 6—Being told what is being done | |||||||
Baseline | 1.4 | 6.8 | 10.0 | 13.1 | 24.5 | 44.2 | 351 |
6 months | 0.3 | 3.8 | 8.0 | 10.8 | 28.7 | 48.4 | 314 |
12 months | 0.4 | 4.9 | 9.9 | 12.7 | 25.4 | 46.6 | 283 |
18 months | 1.9 | 3.4 | 10.7 | 11.8 | 24.4 | 47.7 | 262 |
No. 7—Learning plans | |||||||
Baseline | 1.7 | 8.6 | 11.7 | 12.9 | 22.0 | 43.1 | 350 |
6 months | 1.3 | 5.8 | 10.9 | 11.8 | 25.2 | 45.0 | 313 |
12 months | 0.4 | 7.5 | 14.6 | 12.9 | 23.6 | 41.1 | 280 |
18 months | 2.3 | 6.1 | 10.3 | 11.5 | 24.5 | 45.2 | 261 |
No. 8—Taking part in planning | |||||||
Baseline | 2.6 | 8.9 | 18.9 | 10.6 | 17.2 | 41.8 | 349 |
6 months | 1.0 | 6.1 | 17.4 | 8.0 | 19.6 | 47.9 | 311 |
12 months | 1.1 | 7.8 | 16.4 | 9.3 | 17.4 | 48.0 | 281 |
18 months | 1.2 | 6.2 | 13.5 | 9.6 | 20.8 | 48.8 | 260 |
No. 9—Phrasing own goals | |||||||
Baseline | 0.6 | 11.0 | 18.8 | 4.3 | 17.9 | 47.4 | 346 |
6 months | 0.6 | 4.5 | 14.3 | 4.2 | 22.4 | 53.9 | 308 |
12 months | 1.1 | 5.1 | 14.1 | 6.1 | 22.0 | 51.6 | 277 |
18 months | 1.5 | 3.8 | 16.2 | 6.5 | 21.9 | 50.0 | 260 |
No. 10—Managing symptoms | |||||||
Baseline | 0.3 | 11.4 | 15.4 | 15.7 | 14.2 | 43.0 | 351 |
6 months | 0.6 | 7.9 | 10.2 | 12.7 | 16.5 | 52.1 | 315 |
12 months | 0.4 | 6.4 | 14.5 | 15.2 | 11.0 | 52.5 | 282 |
18 months | 1.2 | 6.6 | 13.9 | 16.2 | 18.5 | 43.6 | 259 |
No. 11—Managing treatment | |||||||
Baseline | 0.0 | 2.0 | 4.0 | 10.1 | 34.9 | 49.0 | 347 |
6 months | 0.0 | 2.5 | 4.8 | 4.8 | 40.1 | 47.8 | 314 |
12 months | 00 | 1.1 | 3.9 | 9.3 | 27.9 | 57.9 | 280 |
18 months | 0.4 | 0.4 | 4.6 | 4.6 | 36.0 | 54.0 | 261 |
No. 12—Managing self-care | |||||||
Baseline | 0.9 | 3.7 | 8.0 | 10.9 | 30.3 | 46.3 | 350 |
6 months | 0.3 | 1.9 | 6.7 | 8.9 | 32.1 | 50.2 | 315 |
12 months | 0.0 | 2.1 | 4.6 | 9.5 | 27.9 | 55.8 | 283 |
18 months | 0.4 | 1.5 | 8.8 | 5.4 | 32.7 | 51.2 | 260 |