Qualitative assessment of the patient experience of primary hyperoxaluria type 1: an observational study

BMC Nephrology

Table 3 Most bothersome symptom

Symptom	Patients (Adult and Adolescent) N = 14	Care Recipients ^a N = 10	Total N = 24^b
Pain of kidney stones	7	4	11
Fatigue	5	1	6
Other physical pain (e.g., stomach pain, leg pain, and headache)	0	3	3
Bed-wetting	0	2	2
Frequent urination	1	2	3
Painful urination	0	1	1
Skin problems (e.g., blisters)	1	0	1
Weakened immune system	0	1	1

^aMost bothersome symptoms for care recipients reported by caregivers. Interviewees could indicate more than 1 “most bothersome” symptom
^bFour patients did not provide a response

ISSN: 1471-2369