Table 5 Most bothersome impact
Impact | Patient (Adult and Adolescent) N = 11 | Care Recipients a N = 10 | Total b N = 21 | Selected Illustrative Quotes |
|---|---|---|---|---|
Treatment requirements (e.g., diet, fluid intake, dialysis) | 1 | 6 | 7 | "I would think it's definitely, even though he's okay with the lab work, the lab work, having to watch his diet." |
Social life | 6 | 1 | 7 | "I think socializing, it's not that I can't talk to anybody. It's that it's just, it's a bit uncomfortable." "I would say the social aspect." "I think missing out with my friends." |
Emotional/mental impact | 3 | 1 | 4 | "Thinking about going back and having dialysis." |
Ability to attend school | 1 | 0 | 1 | |
Doctor visits | 0 | 1 | 1 | |
Dressing (i.e., need to wear liners due to frequent urination) | 0 | 1 | 1 |