Table 6 Most difficult to manage impact
Impact | Patient (Adult and Adolescent) N = 9 | Care Recipients a N = 6 | Total b N = 15 | Selected Illustrative Quotes |
|---|---|---|---|---|
Treatment requirements (e.g., diet, flud intake, dialysis) | 3 | 2 | 5 | "I just think that she struggles sometimes drinking the water.” “Just taking medicine on time [is] tricky." |
Social life | 3 | 0 | 3 | "Just want to still have a social life or go out." |
Emotional/mental impact | 1 | 2 | 3 | |
Physical limitations (e.g., swimming) | 0 | 1 | 1 | |
Doctor visits | 0 | 1 | 1 | |
Dressing (i.e., need to wear liners due to frequent urination) | 0 | 1 | 1 | |
Difficulty with future pregnancy | 1 | 0 | 1 |