Fraser SDS, Roderick PJ. Kidney disease in the global burden of disease study 2017. Nat Rev Nephrol. 2019;15(4):193–4.
Article
PubMed
Google Scholar
Xie Y, Bowe B, Mokdad AH, Xian H, Yan Y, Li T, Maddukuri G, Tsai CY, Floyd T, Al-Aly Z. Analysis of the global burden of disease study highlights the global, regional, and national trends of chronic kidney disease epidemiology from 1990 to 2016. Kidney Int. 2018;94(3):567–81.
Article
PubMed
Google Scholar
Bello AK, Levin A, Tonelli M, Okpechi IG, Feehally J, Harris D, Jindal K, Salako BL, Rateb A, Osman MA, et al. Assessment of global kidney health care status. JAMA. 2017;317(18):1864–81.
Article
PubMed
PubMed Central
Google Scholar
Liyanage T, Ninomiya T, Jha V, Neal B, Patrice HM, Okpechi I, Zhao MH, Lv J, Garg AX, Knight J, et al. Worldwide access to treatment for end-stage kidney disease: a systematic review. Lancet. 2015;385(9981):1975–82.
Article
PubMed
Google Scholar
Luyckx VA, Tonelli M, Stanifer JW. The global burden of kidney disease and the sustainable development goals. Bull World Health Organ. 2018;96(6):414–422D.
Article
PubMed
PubMed Central
Google Scholar
Instituto Nacional de Estadística Guatemala. Estimaciones y Proyecciones Nacionales de Población: Metodología y Principales Resultados. Ciudad de Guatemala: Government of Guatemala; 2019.
Avila C, Bright R, Gutierrez J, Hoadley K, Manuel C, Romero N, Rodriguez MB. Guatemala health system assessment, august 2015. In. Bethesda: Health Finance & Governance Project, Abt Associates Inc.; 2015.
Google Scholar
Chary A. Rohloff P (eds.): privatization and the new medical pluralism: shifting healthcare landscapes in Maya Guatemala. Lanham: Lexington Press; 2015.
Google Scholar
World Health Organization: Global Health Expenditure Database [https://apps.who.int/nha/database].
Chary A, Flood D, Austad K, Colom M, Hawkins J, Cnop K, Martinez B, Lopez W, Rohloff P. Accompanying indigenous Maya patients with complex medical needs: a patient navigation system in rural Guatemala. Healthc (Amst). 2018;6(2):144–9.
Article
Google Scholar
Ceron A, Ruano AL, Sanchez S, Chew AS, Diaz D, Hernandez A, Flores W. Abuse and discrimination towards indigenous people in public health care facilities: experiences from rural Guatemala. Int J Equity Health. 2016;15:77.
Article
PubMed
PubMed Central
Google Scholar
Laux TS, Barnoya J, Cipriano E, Herrera E, Lopez N, Polo VS, Rothstein M. Prevalence of chronic kidney disease of non-traditional causes in patients on hemodialysis in Southwest Guatemala. Rev Panam Salud Publica. 2016;39(4):186–93.
PubMed
Google Scholar
Alegre-Diaz J, Herrington W, Lopez-Cervantes M, Gnatiuc L, Ramirez R, Hill M, Baigent C, McCarthy MI, Lewington S, Collins R, et al. Diabetes and cause-specific mortality in Mexico City. N Engl J Med. 2016;375(20):1961–71.
Article
PubMed
PubMed Central
Google Scholar
Cusumano AM, Rosa-Diez GJ, Gonzalez-Bedat MC. Latin American Dialysis and transplant registry: experience and contributions to end-stage renal disease epidemiology. World J Nephrol. 2016;5(5):389–97.
Article
PubMed
PubMed Central
Google Scholar
Johnson RJ, Wesseling C, Newman LS. Chronic kidney disease of unknown cause in agricultural communities. N Engl J Med. 2019;380(19):1843–52.
Article
PubMed
Google Scholar
Laux TS, Barnoya J, Guerrero DR, Rothstein M. Dialysis enrollment patterns in Guatemala: evidence of the chronic kidney disease of non-traditional causes epidemic in Mesoamerica. BMC Nephrol. 2015;16:54.
Article
PubMed
PubMed Central
Google Scholar
Pecoits-Filho R, Sola L, Correa-Rotter R, Claure-Del Granado R, Douthat WG, Bellorin-Font E. International Society of Nephrology Regional B: kidney disease in Latin America: current status, challenges, and the role of the ISN in the development of nephrology in the region. Kidney Int. 2018;94(6):1069–72.
Article
PubMed
Google Scholar
Pan American Health Association. Health in the Americas+, 2017 edition. Summary: regional outlook and country pro les. In. PAHO: Washington; 2017.
Google Scholar
Instituto Guatemalteco de Seguridad Social: El IGSS está nominado por la promoción de la salud renal [https://www.igssgt.org/noticias/2019/01/03/el-igss-esta-nominado-por-la-promocion-de-la-salud-renal/].
Lou-Meda R. Comprehensive approach to pediatric kidney diseases in Guatemala. Clin Nephrol. 2015;83(7 Suppl 1):82–4.
Article
PubMed
Google Scholar
Muñoz Palala G. Insuficiencia renal afecta a más personas. Prensa Libre. October 9, 2016 [cited January 29, 2017]. Available from: http://web.archive.org/web/20170106065232/http://www.prensalibre.com/guatemala/comunitario/insuficiencia-renal-afecta-a-mas-personas.
Unidad Nacional de Atención al Enfermo Renal Crónico (UNAERC): Pacientes atendidos por servicio [https://unaerc.gob.gt/estadisticas/pacientes-activos-por-programa-y-consulta-del-mes-segun-bioestadisticas/].
Jain AK, Blake P, Cordy P, Garg AX. Global trends in rates of peritoneal dialysis. J Am Soc Nephrol. 2012;23(3):533–44.
Article
PubMed
PubMed Central
Google Scholar
Orozco A. Enfermedad renal crónica se incrementa cada año. Prensa Libre. 2014 28 July 2014 [cited.
Flood DC, Chary AN, Austad K, Garcia P, Rohloff PJ. A patient navigation system to minimize barriers for peritoneal Dialysis in rural, low-resource settings: case study from Guatemala. Kidney Int Rep. 2017;2(4):762–5.
Article
PubMed
PubMed Central
Google Scholar
Moore J, Garcia P, Rohloff P, Flood D. Treatment of end-stage renal disease with continuous ambulatory peritoneal dialysis in rural Guatemala. BMJ Case Rep. 2018;2018:1-5. https://pubmed.ncbi.nlm.nih.gov/29705734-treatment-of-end-stage-renal-disease-with-continuous-ambulatory-peritoneal-dialysis-in-rural-guatemala/.
Hernández OJ. UNAERC, negocios de mala sangre. Plaza Pública. 2015 October 7, 2015 [cited February 4, 2017]. Available from: https://www.plazapublica.com.gt/content/unaerc-negocios-de-mala-sangre.
León Duque JE. Informe Anual Circunstanciado: Situación de los Derechos Humanos y Memoría de Labores. Procurador de los Derechos Humanos: Guatemala City; 2015.
Google Scholar
O'Brien BC, Harris IB, Beckman TJ, Reed DA, Cook DA. Standards for reporting qualitative research: a synthesis of recommendations. Acad Med. 2014;89(9):1245–51.
Article
PubMed
Google Scholar
Berger R. Now I see it, now I don’t: researcher’s position and reflexivity in qualitative research. Qual Res. 2015;15(2):219–34.
Article
Google Scholar
Kapiriri L, Martin DK. Bedside rationing by health practitioners: a case study in a Ugandan hospital. Med Decis Mak. 2007;27(1):44–52.
Article
Google Scholar
Bello BT, Raji YR, Sanusi I, Braimoh RW, Amira OC, Mabayoje OM. Challenges of providing maintenance hemodialysis in a resource poor country: experience from a single teaching hospital in Lagos, Southwest Nigeria. Hemodial Int. 2013;17(3):427–33.
Article
PubMed
Google Scholar
Luyckx VA, Miljeteig I, Ejigu AM, Moosa MR. Ethical challenges in the provision of Dialysis in resource-constrained environments. Semin Nephrol. 2017;37(3):273–86.
Article
PubMed
Google Scholar
Boateng EA, East L, Evans C. Decision-making experiences of patients with end-stage kidney disease (ESKD) regarding treatment in Ghana: a qualitative study. BMC Nephrol. 2018;19(1):371.
Article
PubMed
PubMed Central
Google Scholar
Chary A, Flood D, Austad K, Moore J, King N, Martinez B, Garcia P, Lopez W, Dasgupta-Tsikinas S, Rohloff P. Navigating bureaucracy: accompanying indigenous Maya patients with complex health care needs in Guatemala. Hum Organ. 2016;75(4):305–14.
Article
Google Scholar
Karopadi AN, Mason G, Rettore E, Ronco C. Cost of peritoneal dialysis and haemodialysis across the world. Nephrol Dial Transplant. 2013;28(10):2553–69.
Article
PubMed
Google Scholar
Mushi L, Marschall P, Flessa S. The cost of dialysis in low and middle-income countries: a systematic review. BMC Health Serv Res. 2015;15(1):506.
Article
PubMed
PubMed Central
Google Scholar
Wearne N, Kilonzo K, Effa E, Davidson B, Nourse P, Ekrikpo U, Okpechi IG. Continuous ambulatory peritoneal dialysis: perspectives on patient selection in low- to middle-income countries. Int J Nephrol Renovasc Dis. 2017;10:1–9.
Article
PubMed
PubMed Central
Google Scholar
Davidson B, Crombie K, Manning K, Rayner B, Wearne N. Outcomes and challenges of a PD-first program, a south-African perspective. Perit Dial Int. 2018;38(3):179–86.
Article
PubMed
Google Scholar
Persad GC, Emanuel EJ. The ethics of expanding access to cheaper, less effective treatments. Lancet. 2016;388(10047):932–4.
Article
PubMed
Google Scholar
Jaar BG, Gimenez LF. Dialysis modality survival comparison: time to end the debate, It's a tie. Am J Kidney Dis. 2018;71(3):309–11.
Article
PubMed
Google Scholar
Bieber SD, Burkart J, Golper TA, Teitelbaum I, Mehrotra R. Comparative outcomes between continuous ambulatory and automated peritoneal dialysis: a narrative review. Am J Kidney Dis. 2014;63(6):1027–37.
Article
PubMed
PubMed Central
Google Scholar
Defaye FB, Desalegn D, Danis M, Hurst S, Berhane Y, Norheim OF, Miljeteig I. A survey of Ethiopian physicians' experiences of bedside rationing: extensive resource scarcity, tough decisions and adverse consequences. BMC Health Serv Res. 2015;15(1):467.
Article
PubMed
PubMed Central
Google Scholar
Moosa MR, Wearne N. Invited commentary should we be rationing Dialysis in South Africa in the 21(st) century? Perit Dial Int. 2018;38(2):84–8.
Article
PubMed
Google Scholar
Moosa MR, Kidd M. The dangers of rationing dialysis treatment: the dilemma facing a developing country. Kidney Int. 2006;70(6):1107–14.
Article
CAS
PubMed
Google Scholar
Heinemann LV, Heinemann T. Burnout Research. SAGE Open. 2017;7(1).
Article
Google Scholar
Rotenstein LS, Torre M, Ramos MA, Rosales RC, Guille C, Sen S, Mata DA. Prevalence of burnout among physicians: a systematic review. JAMA. 2018;320(11):1131–50.
Article
PubMed
PubMed Central
Google Scholar
Maslach C, Jackson SE. The measurement of experienced burnout. J Organ Behav. 1981;2(2):99–113.
Article
Google Scholar
Montiel JLC. Síndrome de Burnout en Residentes del Hospital Roosevelt de Guatemala. Rev de la Asociación de Medicina Interna de Guatemala. 2015;19(1):12–7.
Google Scholar
Gutiérrez HAO, King EQBS. Prevalencia del síndrome burnout, o síndrome de desgaste laboral, en personal del Hospital Nacional de Salud Mental de Guatemala. Revista Latinoamericana de Psiquiatría. 2011;10(1):11–7.
Google Scholar
Suñer-Soler R, Grau-Martín A, Flichtentrei D, Prats M, Braga F, Font-Mayolas S, Gras ME. The consequences of burnout syndrome among healthcare professionals in Spain and Spanish speaking Latin American countries. Burn Res. 2014;1(2):82–9.
Article
Google Scholar
Hayes B, Bonnet A. Job satisfaction, stress and burnout associated with haemodialysis nursing: a review of literature. J Ren Care. 2010;36(4):174–9.
Article
PubMed
Google Scholar
Argentero P, Dell'Olivo B, Ferretti MS. Staff burnout and patient satisfaction with the quality of dialysis care. Am J Kidney Dis. 2008;51(1):80–92.
Article
PubMed
Google Scholar
Jameton A. Nursing practice: the ethical issues: prentice-hall Englewood cliffs, NJ; 1984.
Google Scholar
Ulrich CM, Grady C. Moral distress in the health professions: springer; 2018.
Book
Google Scholar
Armin JS. Administrative (in) visibility of patient structural vulnerability and the hierarchy of moral distress among health care staff. Med Anthropol Q. 2019;33(2):191–206.
Article
PubMed
Google Scholar
Ulrich CM. Ebola is causing moral distress among African healthcare workers. BMJ. 2014;349(nov07 2):g6672.
Article
PubMed
Google Scholar
Harris DCH, Davies SJ, Finkelstein FO, Jha V, Donner JA, Abraham G, Bello AK, Caskey FJ, Garcia GG, Harden P, et al. Increasing access to integrated ESKD care as part of universal health coverage. Kidney Int. 2019;95(4S):S1–S33.
Article
PubMed
Google Scholar
Ministerio de Salud Pública y Asistencia Social: MSPAS presenta Registro Único Guatemalteco de Diálisis y Trasplante Renal. 2019.
Google Scholar
Lou-Meda RM, Valle AL, Urla C, Mazariegos J. Epidemiologic and socioeconomic profile of Guatemalan hemodialysis patients: assessment and dissemination via a free-access information system. Clin Nephrol. 2019:S1-6. https://pubmed.ncbi.nlm.nih.gov/31397266-epidemiologic-and-socioeconomic-profile-of-guatemalan-hemodialysis-patients-assessment-and-dissemination-via-a-free-access-information-system/.
Mazhar F, Nizam N, Fatima N, Siraj S, Rizvi SA. Problems associated with access to renal replacement therapy: experience of the Sindh Institute of Urology and Transplantation. Exp Clin Transplant. 2017;15(Suppl 1):46–9.
PubMed
Google Scholar
Tonelli M, Wiebe N, Knoll G, Bello A, Browne S, Jadhav D, Klarenbach S, Gill J. Systematic review: kidney transplantation compared with dialysis in clinically relevant outcomes. Am J Transplant. 2011;11(10):2093–109.
Article
CAS
PubMed
Google Scholar
Lou-Meda R. La Nefrología en Guatemala: Una Historia Vivida. Master’s Thesis: Universidad de San Carlos de Guatemala; 2011.
Google Scholar
Piedrasanta Batz JI, Galindo Castillo F, Gómez Quiroa DA, Sapón Pérez BF: Trasplante renal como opción terapéutica en guatemala. Asociación de Medicina Interna de Guatemala 2017, 21(Supplement No. 01):33–38.
Flood D, Chary A, Austad K, Coj M, Lopez W, Rohloff P. Patient navigation and access to Cancer Care in Guatemala. J Glob Oncol. 2018;4(4):1–3.
PubMed
Google Scholar
Garcia-Gallont R. Rudolf Garcia-Gallont, MD. Transplantation. 2016;100(12):2491–3.
Article
PubMed
Google Scholar
Ramay BM, Ceron A, Mendez-Alburez LP, Lou-Meda R. Factors associated to acceptable treatment adherence among children with chronic kidney disease in Guatemala. PLoS One. 2017;12(10):e0186644.
Article
PubMed
PubMed Central
CAS
Google Scholar
Moore J, Baird C, Rohloff P. Fluid illness: Dialysis, undercare, and the social life of kidney disease in rural Guatemala. Med Anthropol Theory. 2019;6(1):49–73.
Article
Google Scholar